Cohort Profile of the International Spinal Cord Injury Community Survey Implemented in 22 Countries
| Autor: | Christina-Anastasia Rapidi, Johan K. Stanghelle, Mirjam Brach, Abderrazak Hajjioui, Cristina Ehrmann, Bum-Suk Lee, Nazirah Hasnan, Reuben Escorpizo, Christine Fekete, Eiichi Saitoh, B Perrouin-Verbe, Marcel W M Post, Alvydas Juocevičius, Mercè Avellanet, Jianan Li, Mauro Zampolini, James Middleton, Daiana Popa, Conran Joseph, Christoph Gutenbrunner, Michael Baumberger, Linamara Rizzo Battistella, Apichana Kovindha, Piotr Tederko, Luh Karunia Wahyuni, Gerold Stucki |
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| Přispěvatelé: | Extremities Pain and Disability (EXPAND) |
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Adult
Male REHABILITATION 030506 rehabilitation International Cooperation medicine.medical_treatment Psychological intervention Physical Therapy Sports Therapy and Rehabilitation Global Health World Health Organization Cohort Studies 03 medical and health sciences Survey methodology 0302 clinical medicine Interquartile range medicine Spinal cord injuries Humans Spinal cord injury Tetraplegia Rehabilitation business.industry Patient Selection Middle Aged medicine.disease Cross-Sectional Studies Quartile Cohort Income Female 0305 other medical science business Surveys and questionnaires SET 030217 neurology & neurosurgery Demography |
| Zdroj: | Archives of Physical Medicine and Rehabilitation, 101(12), 2103-2111. W B SAUNDERS CO-ELSEVIER INC |
| ISSN: | 0003-9993 |
| DOI: | 10.1016/j.apmr.2020.01.022 |
| Popis: | Objectives: To detail the methodological features of the first International Spinal Cord Injury (InSCI) Community Survey by describing recruitment and data collection procedures, and to report on the recruitment results and basic characteristics of participants by country and income setting.Design: Cross-sectional survey.Setting: Community setting in 22 countries representing all 6 World Health Organization regions.Participants: Individuals (N = 12,591) with traumatic or non-traumatic spinal cord injury (SCI) aged over 18 years.Interventions: Not applicable.Main Outcome Measures: Recruitment and data collection procedures, recruitment results, and basic sociodemographic and lesion characteristics of participants.Results: Eight countries used predefined sampling frames and 14 countries applied convenience sampling for recruitment. Most countries recruited participants through specialized rehabilitation facilities, patient organizations, or acute and general hospitals. Modes of approaching potential participants depended on the sampling strategy and multiple response modes were offered to maximize participation. Contact rates ranged from 33% to 98%, cooperation rates ranged from 29% to 90%, and response rates ranged from 23% to 54%. The majority of participants were men (73%), the median age was 52 years (interquartile range, 40-63y), 60% had a partner, 8% reported that they were born in another country than where they were currently residing, and the median length of education was 12 years (interquartile range, 9-15y). Paraplegia was the main diagnosis (63%), traumatic etiologies were the major cause of injury (81%), and the median time since injury (TSI) was 9 years (interquartile range, 4-19y). Compared with participants from lower income settings, participants from higher income settings were over-represented and, in general, were older, more often diagnosed with tetraplegia, had a longer TSI, higher education, and were more often born in a country different than their current residence country.Conclusions: The successful implementation of the InSCI survey enables the comparison of the situation of individuals with SCI around the world and constitutes a crucial starting point for an international learning experience. (C) 2020 by the American Congress of Rehabilitation Medicine |
| Databáze: | OpenAIRE |
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