Differences in health care experiences between rare cancer and common cancer patients: results from a national cross-sectional survey
| Autor: | Jan Maarten van der Zwan, Eline de Heus, Mark I. van Berge Henegouwen, Irene Dingemans, M. Schrieks, Carol Richel, Vivian Engelen, Saskia F. A. Duijts, Marc G. Besselink, Carla M.L. van Herpen |
|---|---|
| Přispěvatelé: | Surgery, Medical psychology, Public and occupational health, APH - Societal Participation & Health, CCA - Cancer Treatment and Quality of Life, Amsterdam Gastroenterology Endocrinology Metabolism |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Patient experience
Adult medicine.medical_specialty Referral Cross-sectional study Expertise Cancer development and immune defence Radboud Institute for Health Sciences [Radboudumc 2] 03 medical and health sciences All institutes and research themes of the Radboud University Medical Center 0302 clinical medicine Internal medicine Neoplasms Health care Medicine Humans Pharmacology (medical) 030212 general & internal medicine Genetics (clinical) Netherlands business.industry Research Second opinion Cancer type Cancer Rare cancer General Medicine medicine.disease Hospitals Cross-Sectional Studies Oncology 030220 oncology & carcinogenesis Hospital choice business Delivery of Health Care Rare cancers Radboud Institute for Health Sciences [Radboudumc 9] |
| Zdroj: | Orphanet Journal of Rare Diseases Orphanet Journal of Rare Diseases, 16 Orphanet Journal of Rare Diseases, 16, 1 de Heus, E, Engelen, V, Dingemans, I, Richel, C, Schrieks, M, van der Zwan, J M, Besselink, M G, van Berge Henegouwen, M I, van Herpen, C M L & Duijts, S F A 2021, ' Differences in health care experiences between rare cancer and common cancer patients : results from a national cross-sectional survey ', Orphanet Journal of Rare Diseases, vol. 16, no. 1, 249 . https://doi.org/10.1186/s13023-021-01886-2 Orphanet Journal of Rare Diseases, 16(1):249. BioMed Central Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-9 (2021) Orphanet journal of rare diseases, 16(1):249. BioMed Central |
| ISSN: | 1750-1172 |
| Popis: | Background Patients with rare cancers face challenges in the diagnostic and treatment phase, and in access to clinical expertise. Since studies on health care experiences of these patients in comparison to patients with more common cancers are scarce, we aimed to explore these differences. Methods Data were cross-sectionally collected among (former) adult cancer patients through a national online survey in the Netherlands (October 2019). Descriptive statistics were reported and subgroups (rare vs. common patients) were compared. Results In total, 7343 patients (i.e., 1856 rare and 5487 common cancer patients) participated. Rare cancer patients were more often diagnosed and treated in different hospitals compared to common cancer patients (67% vs. 59%, p p = 0.014), but reported more negative experiences when treated in multiple hospitals than common cancer patients (14% vs. 9%, p p p p Conclusions Rare and common cancer patients differ in their health care experiences. Health care for rare cancer patients can be further improved by proper referral to centers of expertise and building a clinical network specifically for rare cancers. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|
Full text from SpringerLink