Flexible model for patient engagement: Achieving quality outcomes and building a research agenda for head and neck cancer
| Autor: | Karen E Kippen, Heather A Olden, Steven S. Chang, Ayaka J. Iwata, Christine Cole Johnson, Warren C. Swegal |
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| Rok vydání: | 2019 |
| Předmět: |
Adult
Male Oncology clinic media_common.quotation_subject education Patient engagement Survivorship 03 medical and health sciences 0302 clinical medicine Multidisciplinary approach Survivorship curve medicine Humans Quality (business) Survivors 030212 general & internal medicine Aged media_common Patient Care Team Medical education business.industry Head and neck cancer Champion Regret Middle Aged medicine.disease Quality Improvement Organizational Innovation United States Caregivers Otorhinolaryngology Head and Neck Neoplasms Research Design 030220 oncology & carcinogenesis Female Interdisciplinary Communication Patient Participation business |
| Zdroj: | Head & Neck. 41:1087-1093 |
| ISSN: | 1097-0347 1043-3074 |
| Popis: | Background This article describes the benefits of patient-driven research in the field of head and neck oncology, reviews lessons learned from establishing partnerships with patients and caregivers, and serves as a model for further patient-driven research endeavors. Methods Head and neck cancer survivors underwent training including that of effective communication and the basics of research methodology. They then drove the agendas for monthly meetings that included a multidisciplinary team of providers, facilitated by a physician champion (S.S.C.). Results The advisors reported concrete areas for improvement of the clinical flow, including the formation of a dental oncology clinic and a post-treatment survivorship clinic. They also refined research topics of interest, such as treatment regret. The advisors have also driven efforts to increase public awareness and have participated in cancer symposiums and local presentations. Conclusion Patient-driven research improves the relevance and implementation of head and neck oncology research and clinical processes. |
| Databáze: | OpenAIRE |
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