Fulfillment of patients’ information needs during oral cancer treatment and its association with posttherapeutic quality of life
| Autor: | Michael-Tobias Neuhaus, Philippe Korn, Frank Tavassol, Nils-Claudius Gellrich, Alexander-Nicolai Zeller, Rüdiger Zimmerer, Gertrud Krüskemper, Philipp Jehn, Simon Spalthoff |
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| Rok vydání: | 2020 |
| Předmět: |
Adult
Male medicine.medical_specialty Adolescent Information needs Disease Young Adult 03 medical and health sciences 0302 clinical medicine Quality of life Surveys and Questionnaires medicine Humans Child Association (psychology) Aged Retrospective Studies Rehabilitation Study Aged 80 and over business.industry 030503 health policy & services Public health Infant Newborn Public Health Environmental and Occupational Health Infant Cancer Middle Aged medicine.disease Cancer treatment Child Preschool 030220 oncology & carcinogenesis Quality of Life Physical therapy Female Mouth Neoplasms 0305 other medical science business |
| Zdroj: | Quality of Life Research. 30:169-180 |
| ISSN: | 1573-2649 0962-9343 |
| DOI: | 10.1007/s11136-020-02616-0 |
| Popis: | Surgical therapy for oral cancer can lead to severe physical and psychological disorders that negatively impact patient quality of life (QoL). This study aimed to evaluate the relationship between fulfillment of patients’ information needs during oral cancer treatment and patients’ perception of posttherapeutic disorders influencing QoL. A retrospective analysis of 1359 patients who were surgically treated for oral cancer using questionnaires administered during the multicenter rehabilitation study by the German–Austrian–Swiss Cooperative Group on Tumors of the Maxillofacial Region (DOSAK). Patients and medical practitioners completed questionnaires following cancer treatment. Approximately 37% of patients felt inadequately informed about possible physical and psychological consequences of surgery. In contrast, only 16% of patients felt they were given inadequate information about the operative procedure and possible complications, and with regard to tumor diagnosis and cancer disease, only 15% of patients. Significant correlations were found between lacking information and increased perception of posttherapeutic disorders, whereas correlations with tumor-specific and operation-related parameters were markedly lower. The patients with superior QoL after treatment stated more frequently, nearly independent of individual patient characteristics, that the information that they were given prior to therapy was adequate. Information concerning possible physical and psychological consequences of an operation, however, was frequently stated to be inadequate, independent of QoL. Patients whose information needs concerning the diagnosis and treatment of oral cancer are adequately fulfilled may benefit in terms of their therapeutic outcome, experiencing less perception of posttherapeutic physical and psychological disorders and a superior QoL. |
| Databáze: | OpenAIRE |
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