Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors
| Autor: | Armida W. M. Fabius, Wijnanda A. Kors, Annette C. Moll, Ton Houffelaar, Machteld I. Bosscha, Nuray A. McNeill, Irma M. Verdonck-de Leeuw, Jennifer van Dijk |
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| Přispěvatelé: | CCA - Cancer Treatment and quality of life, Pediatric surgery, Ophthalmology, Medical psychology, APH - Personalized Medicine, APH - Mental Health, Otolaryngology / Head & Neck Surgery, APH - Quality of Care, APH - Health Behaviors & Chronic Diseases, Amsterdam Reproduction & Development (AR&D), ACS - Diabetes & metabolism |
| Rok vydání: | 2017 |
| Předmět: |
Male
Quality of life medicine.medical_specialty Adolescent Referral Clinical practice Health informatics Article Proxy (climate) 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Cancer Survivors Surveys and Questionnaires medicine Humans Patient Reported Outcome Measures 030212 general & internal medicine Child Patient reported outcomes Structured communication E-health Oncology (nursing) Retinoblastoma business.industry Public health medicine.disease humanities Oncology Child Preschool 030220 oncology & carcinogenesis Physical therapy Feasibility Studies Female business Psychosocial |
| Zdroj: | Journal of Cancer Survivorship, 11(6), 683-690. Springer New York Journal of Cancer Survivorship McNeill, N A, Kors, W A, Bosscha, M I, van Dijk, J, Fabius, A W M, Houffelaar, T, Verdonck-de Leeuw, I M & Moll, A C 2017, ' Feasibility of RetinoQuest : e-health application to facilitate and improve additional care for retinoblastoma survivors ', Journal of Cancer Survivorship, vol. 11, no. 6, pp. 683-690 . https://doi.org/10.1007/s11764-017-0642-z |
| ISSN: | 1932-2267 1932-2259 |
| Popis: | Purpose The current study aimed to evaluate the feasibility of RetinoQuest in clinical practice, from survivors and healthcare professionals’ (HCPs) point of view. Methods RetinoQuest is a touch screen computer program to monitor health-related quality of life (HRQoL) of retinoblastoma survivors via patient-reported outcome measures (PROMs) targeting children (4–10 years) as evaluated by their parents (proxy measures), adolescents (11–18 years), and adults. Feasibility was evaluated by the actual time taken to complete the PROMs, acceptability of the time as perceived by the users, the content of PROMs in RetinoQuest, and overall satisfaction with RetinoQuest. Results Ninety-six survivors participated: 41 parents of children, 38 adolescents, and 17 adults. Mean time to complete the evaluation form was 7.8 min (median 6.7, range 2.4–24.5), and 90% of the users stated that the time needed to complete PROMs in RetinoQuest was acceptable. The majority of users reported that it was important to answer the questions (88% of the parents, 66% of the adolescents, and 76% of the adult survivors) and that all important issues were covered, e.g., no missing questions (78, 84, and 76%, respectively). Satisfaction rate was high, 7.8 according to parents, 8.1 according to adolescents, and 7.7 for adults. Conclusions RetinoQuest is a feasible e-health application to monitor HRQoL in retinoblastoma survivors in clinical practice. Implications for cancer survivors This tool allows for open and structured communication which can lead to early detection of psychosocial impacts on quality of life and referral of the retinoblastoma survivors. Electronic supplementary material The online version of this article (10.1007/s11764-017-0642-z) contains supplementary material, which is available to authorized users. |
| Databáze: | OpenAIRE |
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