Ten principles for data sharing and commercialization
| Autor: | Sarah Collins Rossetti, David K. Vawdrey, Philip R. O. Payne, Thomas M. Maddox, Soumitra Sengupta, Curtis L. Cole, Andrew E. Williams, Michael Halaas, Trushna Dave, Geoff Gordon, Deborah Estrin |
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| Rok vydání: | 2020 |
| Předmět: |
Knowledge management
Biomedical Research 020205 medical informatics AcademicSubjects/SCI01060 data sharing 050801 communication & media studies Health Informatics 02 engineering and technology Intellectual property privacy Commercialization Schools Health Occupations 0508 media and communications Health care 0202 electrical engineering electronic engineering information engineering electronic medical records Electronic Health Records Set (psychology) AcademicSubjects/MED00580 Government Academic Medical Centers business.industry Information Dissemination Medical record 05 social sciences Ownership intellectual property Data sharing Perspective Key (cryptography) Business Health Facilities AcademicSubjects/SCI01530 policy |
| Zdroj: | Journal of the American Medical Informatics Association : JAMIA |
| ISSN: | 1527-974X |
| Popis: | Digital medical records have enabled us to employ clinical data in many new and innovative ways. However, these advances have brought with them a complex set of demands for healthcare institutions regarding data sharing with topics such as data ownership, the loss of privacy, and the protection of the intellectual property. The lack of clear guidance from government entities often creates conflicting messages about data policy, leaving institutions to develop guidelines themselves. Through discussions with multiple stakeholders at various institutions, we have generated a set of guidelines with 10 key principles to guide the responsible and appropriate use and sharing of clinical data for the purposes of care and discovery. Industry, universities, and healthcare institutions can build upon these guidelines toward creating a responsible, ethical, and practical response to data sharing. |
| Databáze: | OpenAIRE |
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