Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study
| Autor: | Mary Devins, Julie Ling, Sandra McCarthy, Claire Quinn, Maeve O’Reilly, Marie Twomey |
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| Rok vydání: | 2017 |
| Předmět: |
Parents
medicine.medical_specialty Palliative care Databases Factual Delphi Technique Delphi method Specialty Pediatrics 03 medical and health sciences 0302 clinical medicine Nursing Statutory law Health care medicine Humans 030212 general & internal medicine Advanced and Specialized Nursing Complex care needs Health Services Needs and Demand Terminal Care business.industry Research Siblings Palliative Care Hospice Care 030220 oncology & carcinogenesis Family medicine Quality of Life business Ireland |
| Zdroj: | International Journal of Palliative Nursing. 23:88-97 |
| ISSN: | 2052-286X 1357-6321 |
| DOI: | 10.12968/ijpn.2017.23.2.88 |
| Popis: | This paper reports the findings from a Delphi Study undertaken to identify the research priorities in children's palliative care in Ireland. Palliative care for children is a small and highly specialised field of healthcare that focuses on improving the quality of life of children living with, or dying from, a life-limiting condition. Ideally, support for children requiring palliative care begins at the time of diagnosis, which for many children with life-limiting conditions can be from birth. There is a notable overlap between the needs of children requiring palliative care and those with disabilities and other complex care needs, resulting in care being provided by a range of voluntary and statutory agencies. As a new specialty, there is a need to develop an evidence-based approach to providing children's palliative care. In order to do this in a systematic way, identification of the research priorities in children's palliative care within Ireland is required. |
| Databáze: | OpenAIRE |
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