Factors Associated with Mobility Outcomes in a National Spina Bifida Patient Registry
| Autor: | Amol Karmarkar, James Chinarian, Jacob A. Neufeld, Diane M. Collins, Katelyn M. Cushanick, Brad E. Dicianno, Pamela E. Wilson, Kathryn E. Smith, Theresa M. Crytzer, Andrew McCoy, Amy J. Houtrow |
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| Rok vydání: | 2015 |
| Předmět: |
Adult
Male congenital hereditary and neonatal diseases and abnormalities medicine.medical_specialty Adolescent Cross-sectional study medicine.medical_treatment MEDLINE Physical Therapy Sports Therapy and Rehabilitation Article Cohort Studies Young Adult Outcome Assessment Health Care medicine Humans Muscle Strength Registries Mobility Limitation Young adult Child Spinal Dysraphism Aged Rehabilitation Patient registry Spina bifida business.industry Age Factors Middle Aged medicine.disease Cerebrospinal Fluid Shunts Dependent Ambulation United States nervous system diseases Cross-Sectional Studies Wheelchairs Child Preschool Ambulatory Physical therapy Female business Cohort study |
| Zdroj: | American Journal of Physical Medicine & Rehabilitation. 94:1015-1025 |
| ISSN: | 0894-9115 |
| Popis: | To provide descriptive data on ambulatory ability and muscle strength in a large cohort of individuals with spina bifida enrolled in a National Spina Bifida Patient Registry and to investigate factors associated with ambulatory status.Cross-sectional analysis of data from a multisite patient registry.Descriptive analysis of mobility variables for 2604 individuals with spina bifida aged 5 and older are presented from 19 sites in the United States. Analysis of a subset of National Spina Bifida Patient Registry data from 380 individuals from 3 sites accompanied by data from a specialized spina bifida electronic medical record revealed that those with no history of a shunt, lower motor level, and no history of hip or knee contracture release surgery were more likely to be ambulatory at the community level than at the household or wheelchair level.This study is the first to examine factors associated with ambulatory status in a large sample of individuals with myelomeningocele and nonmyelomeningocele subtypes of spina bifida. Results of this study delineate the breadth of strength and functional abilities within the different age groups and subtypes of spina bifida. The results may inform physicians of the characteristics of those with varying ambulatory abilities. |
| Databáze: | OpenAIRE |
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