Dutch professionals' discussion preferences with the parents of extremely premature infants varied, but the trend was towards shared decision-making

Autor: R. Geurtzen, L. De Proost, A. A. E. Verhagen, I. K. M. Reiss, M. Hogeveen, E. J. T. Verweij
Přispěvatelé: Pediatrics, Obstetrics & Gynecology
Jazyk: angličtina
Rok vydání: 2023
Předmět:
Zdroj: Acta Paediatrica, 112, 1200-1208
Acta Paediatrica, 112, 6, pp. 1200-1208
Acta Paediatrica, International Journal of Paediatrics, 112(6), 1200-1208. Wiley-Blackwell
Acta Paediatrica, 112(6), 1131-1357. Wiley
ISSN: 1651-2227
0803-5253
Popis: Contains fulltext : 292715.pdf (Publisher’s version ) (Open Access) AIM: We explored professionals' views on sharing decision-making with parents before and after an extremely preterm birth and what healthcare professionals considered severe outcomes. METHODS: A nationwide, multi-centre online survey was carried out among a wide range of perinatal healthcare professionals in the Netherlands from 4 November 2020 to 10 January 2021. The medical chairs of all nine Dutch Level III and IV perinatal centres helped to disseminate the survey link. RESULTS: We received 769 survey responses. Most respondents (53%) preferred to place equal emphasis on two treatment options during shared prenatal decision-making: early intensive care or palliative comfort care. The majority (61%) wanted to include a conditional intensive care trial as a third treatment option, but 25% disagreed. Most (78%) felt that healthcare professionals were responsible for initiating postnatal conversations to justify continuing or withdrawing neonatal intensive care if complications were associated with poor outcomes. Finally, 43% were satisfied with the current definitions of severe long-term outcomes, 41% were unsure and there were numerous for a broader definition. CONCLUSION: Although Dutch professionals expressed diverse preferences on how to reach decisions about extremely premature infants, we observed a trend towards shared decision-making with parents. These results could inform future guidelines. 01 juni 2023
Databáze: OpenAIRE
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