Psychological measures of patient’s decision-making for prenatal genetic testing
| Autor: | Cassandra Heiselman, Malini D. Persad, Lisa M. Pastore, Jay Davis, Cheryl Dinglas, Diana Garretto, Gina F. Milone, Kimberly Herrera, Ayisha Buckley |
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| Rok vydání: | 2020 |
| Předmět: |
0301 basic medicine
media_common.quotation_subject Decision Making 030105 genetics & heredity law.invention 03 medical and health sciences 0302 clinical medicine Pregnancy law Surveys and Questionnaires medicine Humans Genetic Testing Referral and Consultation Genetic testing media_common 030219 obstetrics & reproductive medicine medicine.diagnostic_test business.industry Obstetrics and Gynecology Diagnostic test Certainty humanities Distress Cross-Sectional Studies Pediatrics Perinatology and Child Health Amniocentesis CLARITY Female business Clinical psychology |
| Zdroj: | The Journal of Maternal-Fetal & Neonatal Medicine. 35:4130-4136 |
| ISSN: | 1476-4954 1476-7058 |
| Popis: | To use a questionnaire to determine the levels of maternal decision-related distress, clarity of the pros and cons, and certainty when considering prenatal genetic diagnostic testing; and to assess the relationship between these constructs and patient characteristics.Cross-sectional study. Voluntary, anonymous questionnaires distributed 2017-2019 to women referred for invasive prenatal genetic testing. Excluded: English or Spanish illiterate. Maternal characteristics were collected. Questions evaluated distress, decisional certainty, and decisional clarity on a 5-point Likert scale (range: 0 = low/uncertain/unclear to 4 = high/certain/clear). Analysis: non-parametric Kruskal-Wallis, correlation statistics, and ANOVA.Forty-four female patients completed it. Most were married, white, Catholic, and multiparous. 58% had already made a testing decision. Patients expressed low distress levels (mean 1.18 ± 0.80) and expressed high decisional certainty (mean 3.28 ± 0.76) and clarity (mean 3.30 ± 0.99). Decisional certainty and clarity were positively correlated (Higher maternal distress scores were associated with lower decisional certainty and decisional clarity in women considering prenatal genetic testing. |
| Databáze: | OpenAIRE |
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