Cross-cultural validity of the thyroid-specific quality-of-life patient-reported outcome measure, ThyPRO

Autor: Johannes W. A. Smit, Ulla Feldt-Rasmussen, Vladan Zivaljevic, Claudio Marcocci, Åse Krogh Rasmussen, Branka Bukvic, Mogens Groenvold, Kathryn Eilene Lasch, Giuseppe Barbesino, Russell Drummond, Jakob B. Bjorner, Anjali Mishra, Merel S. Ekker, Ove Tørring, Torquil Watt, Mayilvaganan Sabaretnam, Valeska Kantzer, Audrey Russell, Laszlo Hegedüs, Ivan Paunovic, Terence J. Quinn, Steen Joop Bonnema, Romana T. Netea-Maier
Jazyk: angličtina
Rok vydání: 2015
Předmět:
Quality of life
Adult
Male
Questionnaires
Cross-Cultural Comparison
Denmark
Culture
India
Personal Satisfaction
Rare cancers Radboud Institute for Molecular Life Sciences [Radboudumc 9]
Cross-cultural validity
Differential item functioning
Patient-reported outcome measure
Thyroid diseases
Female
Humans
Italy
Language
Logistic Models
Middle Aged
Netherlands
Quality of Life
Serbia
Sweden
Thyroid Diseases
Translations
Patient Outcome Assessment
Self Report
Public Health
Environmental and Occupational Health
Affect (psychology)
Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18]
Surveys and Questionnaires
Medicine
business.industry
Environmental and Occupational Health
Cognition
Cross-cultural studies
Test (assessment)
Patient-reported outcome
Pairwise comparison
Public Health
business
Demography
Clinical psychology
Zdroj: Quality of Life Research, 24, 769-80
Quality of Life Research, 24, 3, pp. 769-80
Watt, T, Barbesino, G, Bjorner, J B, Bonnema, S J, Bukvic, B, Drummond, R, Groenvold, M, Hegedüs, L, Kantzer, V, Lasch, K E, Marcocci, C, Mishra, A, Netea-Maier, R, Ekker, M, Paunovic, I, Quinn, T J, Rasmussen, Å K, Russell, A, Sabaretnam, M, Smit, J, Törring, O, Zivaljevic, V & Feldt-Rasmussen, U 2015, ' Cross-cultural validity of the thyroid-specific quality-of-life patient-reported outcome measure, ThyPRO ', Quality of Life Research, vol. 24, no. 3, pp. 769-780 . https://doi.org/10.1007/s11136-014-0798-1
ISSN: 0962-9343
Popis: Contains fulltext : 152088.pdf (Publisher’s version ) (Closed access) BACKGROUND AND PURPOSE: Thyroid diseases are common and often affect quality of life (QoL). No cross-culturally validated patient-reported outcome measuring thyroid-related QoL is available. The purpose of the present study was to test the cross-cultural validity of the newly developed thyroid-related patient-reported outcome ThyPRO, using tests for differential item functioning (DIF) according to language version. METHODS: The ThyPRO consists of 85 items summarized in 13 multi-item scales and one single item. Scales cover physical and mental symptoms, well-being and function as well as social and daily function and cosmetic concerns. Translation applied standard forward-backward methodology with subsequent cognitive interviews and reviews. Responses (N = 1,810) to the ThyPRO were collected in seven countries: UK (n = 166), The Netherlands (n = 147), Serbia (n = 150), Italy (n = 110), India (n = 148), Denmark (n = 902) and Sweden (n = 187). Translated versions were compared pairwise to the English version by examining uniform and nonuniform DIF, i.e., whether patients from different countries respond differently to a particular item, although they have identical level of the concept measured by the item. Analyses were controlled for thyroid diagnosis. DIF was investigated by ordinal logistic regression, testing for both statistical significance and magnitude (DeltaR (2) > 0.02). Scale level was estimated by the sum score, after purification. RESULTS: For twelve of the 84 tested items, DIF was identified in more than one language. Eight of these were small, but four were indicative of possible low translatability. Twenty-one instances of DIF in single languages were identified, indicating potential problems with the particular translation. However, only seven were of a magnitude which could affect scale scores, most of which could be explained by sample differences not controlled for. CONCLUSION: The ThyPRO has good cross-cultural validity with only minor cross-cultural invariance and is recommended for use in international multicenter studies.
Databáze: OpenAIRE
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