An Observational Study of Family Caregivers' Quality of Life Caring for Patients With a Stoma
| Autor: | Giancarlo Cicolini, Daniele Pavone, Pasquale Franchelli, Valentina Simonetti, Elisabetta Palma |
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| Rok vydání: | 2012 |
| Předmět: |
Male
Gerontology media_common.quotation_subject Psychological intervention Standard of living Risk Assessment Quality of life (healthcare) Surveys and Questionnaires Adaptation Psychological Humans Medicine Interpersonal Relations media_common Advanced and Specialized Nursing Total quality management business.industry Family caregivers Gastroenterology Surgical Stomas Caregiver burden Middle Aged Helping Behavior Long-Term Care Friendship Cross-Sectional Studies Caregivers Italy Socioeconomic Factors Quality of Life Female Observational study business Needs Assessment Stress Psychological |
| Zdroj: | Gastroenterology Nursing. 35:99-104 |
| ISSN: | 1042-895X |
| DOI: | 10.1097/sga.0b013e31824c2326 |
| Popis: | The management of stomas following surgical resection often falls to family caregivers. The purpose of this observational survey was to investigate the family caregivers' quality of life caring for a patient with ostomy. Between August 2008 and July 2009, 144 eligible Italian family members caring for a patient with ostomy were evaluated using two questionnaires: the Caregiver Quality of Life Cancer survey and the Caregiver Burden Inventory. Both questionnaires have similar capabilities to explore the burden of caregiving. The Caregiver Quality of Life Cancer reported a total Quality of Life score of 97.11 (SD = 14.36), whereas the Caregiver Burden Inventory score for the sample was 51.95 (SD = 10.72). Variables of interest included health, self-perception, nationality, society and territory in which the person lives, education, job, standard of living, house, family, relations with partner, and friendship. Only those who provided complete data (n = 123) were included in the analyses. Data show that generally the family caregiver is married (92%), female (97%), and aged 55.15 years (SD = 16.5). The burden of assistance is higher in younger single caregivers, whereas those with children or who are aged have economic concerns. Loss of spirituality is reported in people aged 30-49 and 71-90 years. Family Caregivers' Quality of Life is poor. Further research is needed to determine the effectiveness of social and economic interventions to help family caregivers in the management of long-term assistance. |
| Databáze: | OpenAIRE |
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