Children with spina bifida in Eastern Uganda report a reasonable quality of life relative to their healthy school-attending peers
| Autor: | Benjamin C. Warf, Joshua Magombe, Edith Mbabazi Kabachelor, Helen J Sims-Williams, Hugh P Sims-Williams |
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| Rok vydání: | 2018 |
| Předmět: |
Gerontology
Male Interview Adolescent Visual Analog Scale Visual analogue scale Population Urinary incontinence 03 medical and health sciences 0302 clinical medicine Quality of life 030225 pediatrics Surveys and Questionnaires Medicine Humans Uganda education Child Spinal Dysraphism education.field_of_study business.industry Spina bifida medicine.disease humanities Scale (social sciences) Pediatrics Perinatology and Child Health Quality of Life Female medicine.symptom business Health Utilities Index |
| Zdroj: | Archives of disease in childhood. 104(1) |
| ISSN: | 1468-2044 |
| Popis: | We recently found that male sex, large family size, urinary incontinence and hydrocephalus were all associated with poorer self-reported quality of life (QOL) among 62 children aged 10–14 with spina bifida from Eastern Uganda.1 A limitation of this study was the absence of corresponding QOL scores for unaffected Ugandan children. We therefore conducted a survey to establish reference values for self-reported QOL among healthy Ugandan schoolchildren aged 10–14. A total of 141 healthy schoolchildren from 12 schools in Mbale district participated in a short interview to ascertain ‘health related quality of life’ using the objective Health Utilities Index (HUI3) tool,2 and a subjective measure of QOL using a visual analogue scale (VAS).3 Children were asked a single question, ‘how happy is your life?’ The interviewer indicated the 0 end of the scale (with a sad face pictured) representing ‘very bad’ and the 10 end of the scale (with a smiling face) representing ‘very good’; the child was asked to … |
| Databáze: | OpenAIRE |
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