Satisfaction with care among patients with non-metastatic breast cancer: development and first steps of validation of the REPERES-60 questionnaire
| Autor: | Virginie Migeot, Isabelle Gasquet, Simone Mathoulin-Pélissier, Roger Salamon, Isabelle Ingrand, Gautier Defossez, Lynda Sifer-Riviere, Pierre Ingrand |
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| Přispěvatelé: | Institut Universitaire de Santé Publique [Poitiers], Centre hospitalier universitaire de Poitiers (CHU Poitiers), Plateforme de génétique moléculaire des cancers d'Aquitaine, Institut Bergonié [Bordeaux], UNICANCER-UNICANCER, Troubles du comportement alimentaire de l'adolescent (UMR_S 669), Université Paris Descartes - Paris 5 (UPD5)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université Paris-Sud - Paris 11 (UP11), CERMES - Centre de recherche Médecine, Science, Santé Société (CERMES - UMR 8169 / U750), Université Paris-Sud - Paris 11 (UP11)-École des hautes études en sciences sociales (EHESS)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Centre National de la Recherche Scientifique (CNRS), Epidémiologie, santé publique et développement, Université Bordeaux Segalen - Bordeaux 2-Institut National de la Santé et de la Recherche Médicale (INSERM)-IFR99-ISPED, Université Paris-Sud - Paris 11 (UP11)-Université Paris Descartes - Paris 5 (UPD5)-Institut National de la Santé et de la Recherche Médicale (INSERM), Mouillet, Evelyne, Centre hospitalier universitaire de Poitiers ( CHU Poitiers ), Institut Bergonié - CRLCC Bordeaux, Troubles du comportement alimentaire de l'adolescent ( UMR_S 669 ), Université Paris Descartes - Paris 5 ( UPD5 ) -Institut National de la Santé et de la Recherche Médicale ( INSERM ) -Université Paris-Sud - Paris 11 ( UP11 ), Centre de recherche Médecine, Science, Santé et Société ( CERMES ), Université Paris-Sud - Paris 11 ( UP11 ) -École des hautes études en sciences sociales ( EHESS ) -Institut National de la Santé et de la Recherche Médicale ( INSERM ) -Centre National de la Recherche Scientifique ( CNRS ), Université Bordeaux Segalen - Bordeaux 2-Institut National de la Santé et de la Recherche Médicale ( INSERM ) -IFR99-ISPED |
| Rok vydání: | 2007 |
| Předmět: |
MESH: Combined Modality Therapy
Cancer Research MESH: Mastectomy MESH : Aged MESH: Logistic Models MESH : Breast Neoplasms MESH: Health Care Surveys MESH: Risk Assessment MESH : Neoplasm Invasiveness Care provision MESH: Patient Participation 0302 clinical medicine Surveys and Questionnaires Medicine MESH : Neoplasm Staging MESH : Female 030212 general & internal medicine MESH : Risk Assessment Mastectomy MESH: Treatment Outcome MESH: Aged education.field_of_study MESH: Middle Aged MESH : Questionnaires MESH : Chemotherapy Adjuvant [ SDV.SPEE ] Life Sciences [q-bio]/Santé publique et épidémiologie MESH: Neoplasm Staging MESH : Adult Focus Groups Middle Aged lcsh:Neoplasms. Tumors. Oncology. Including cancer and carcinogens Combined Modality Therapy 3. Good health MESH: Reproducibility of Results Treatment Outcome Oncology MESH: Chemotherapy Adjuvant Chemotherapy Adjuvant Patient Satisfaction 030220 oncology & carcinogenesis Female France MESH : Mastectomy MESH : Focus Groups Research Article Adult medicine.medical_specialty MESH : Patient Satisfaction MESH: Radiotherapy Adjuvant Population Breast Neoplasms MESH : Treatment Outcome lcsh:RC254-282 Risk Assessment MESH : Radiotherapy Adjuvant 03 medical and health sciences Patient satisfaction Quality of life (healthcare) Breast cancer Genetics Humans MESH : Middle Aged Neoplasm Invasiveness MESH : Health Care Surveys Patient participation MESH : France education Aged Neoplasm Staging Gynecology MESH: Humans business.industry MESH : Reproducibility of Results MESH: Questionnaires MESH : Humans Discriminant validity Reproducibility of Results MESH: Adult MESH: Neoplasm Invasiveness medicine.disease Focus group MESH: Patient Satisfaction MESH : Patient Participation MESH: France Logistic Models [SDV.SPEE] Life Sciences [q-bio]/Santé publique et épidémiologie Family medicine Health Care Surveys MESH: Focus Groups [SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie Radiotherapy Adjuvant Patient Participation MESH : Combined Modality Therapy business MESH: Female MESH: Breast Neoplasms MESH : Logistic Models |
| Zdroj: | BMC Cancer BMC Cancer, BioMed Central, 2007, 7, pp.129. ⟨10.1186/1471-2407-7-129⟩ BMC Cancer, 2007, 7, pp.129. ⟨10.1186/1471-2407-7-129⟩ BMC Cancer, Vol 7, Iss 1, p 129 (2007) BMC Cancer, BioMed Central, 2007, 7, pp.129. 〈10.1186/1471-2407-7-129〉 |
| ISSN: | 1471-2407 |
| DOI: | 10.1186/1471-2407-7-129⟩ |
| Popis: | Background The care itinerary for cancer involves difficulties that occur in several different areas, whether in the diagnostic procedures, in surgery, or in adjuvant treatment. The aim of this work was to obtain a valid instrument measuring satisfaction among patients with breast cancer and exploring their care itinerary overall. Methods Development phase: Patient focus groups were implemented in two French regions in order to identify areas of satisfaction in relation to the different phases of care provision in breast cancer. On the basis of the literature and the themes and wordings derived from the focus groups, the patients identified several areas of satisfaction, which they found to be partially covered in an American satisfaction measure that has been validated in the French general population (the Consumer Satisfaction Survey in its French version, CSS-VF, 39 items). The patient focus groups suggested adaptation of certain dimensions of this instrument to the potential care providers (37 items) and produced 45 new items in six areas. Validation phase: Using a large sample of patients (cohort of 820 women with invasive non-metastatic breast cancer) approached one month after treatment, this phase selected items that were comprehensible (non-response rate < 10%), non-redundant (r < 0.80) and reproducible (test-retest conducted on a sub-sample of 166 patients). The dimensions were identified by factor analysis on the selected items. Divergent and discriminant validity were assessed (relationships with quality of life questionnaire, comparisons between extreme groups). Results Results were in favour of not inserting additional broken-down items into the CSS-VF and retaining 21 new items. The factor analysis found the initial structure of the CSS-VF (39 items in 9 dimensions) and the 21 new items divide up into four dimensions (listening abilities and information provided by doctors, organisation and follow-up of medical care provision, psychological support, material environment). No redundancy was observed between new items and CSS-VF items. Internal consistency was high. Divergent and discriminant validity were satisfactory. Conclusion Adding four new dimensions to the CSS-VF yielded a valid 60-item instrument for assessment of care provided in breast cancer. These promising results now require further investigations of its responsiveness and its robustness in other linguistic, cultural and healthcare settings. |
| Databáze: | OpenAIRE |
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