Benefits of Medical Home Care Reaching Beyond Chronically Ill Teens: Exploring Parent Health-Related Quality of Life
| Autor: | Laura J. Chavez, Connor Grannis, Deena J. Chisolm, Millie Dolce |
|---|---|
| Rok vydání: | 2018 |
| Předmět: |
Adult
Male Parents Gerontology Medical home Adolescent education Health literacy Article 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Patient-Centered Care Surveys and Questionnaires 030225 pediatrics Health care Humans Medicine 030212 general & internal medicine Response rate (survey) Medicaid business.industry Mental health United States Self Care Chronic Disease Pediatrics Perinatology and Child Health Quality of Life Female business human activities Health care quality |
| Zdroj: | Academic Pediatrics. 18:662-668 |
| ISSN: | 1876-2859 |
| DOI: | 10.1016/j.acap.2018.02.007 |
| Popis: | Background Caring for teens with special health care needs places physical and mental health burdens on parents, which can be exacerbated by the stresses of transitions to independence. Medical homes can improve teen transitions to greater self-management and reduce health care–related time and financial burdens for families. We examined the association between parent-reported teen medical home status and caregiver health-related quality of life (HRQOL). Methods The study sample included parents or caregivers of teens with special health care needs aged 15 to 18 recruited from a pediatric Medicaid accountable care organization who participated in a survey (response rate, 40.5%). The primary outcome was parent HRQOL scores (0–100 points) measured using the Pediatric Quality of Life Inventory Family Impact Module. Medical home status was based on parent report of teen's health care meeting medical home criteria. Linear regression models were used to estimate HRQOL scores, adjusted for demographic characteristics, health literacy, and teen functional limitation. Results Among 488 parents, 27% reported their teen received care consistent with a medical home. Adjusted parent HRQOL scores were significantly higher among those whose teens had a medical home (74.40; 95% confidence interval, 71.31–77.48), relative to those whose teens did not (65.78; 95% confidence interval, 63.92–67.65). Medical home subscale analyses showed HRQOL scores had significant positive associations with family-centered care and coordinated care, but not other subscales. Conclusions Teen medical home status was positively associated with caregiver HRQOL, suggesting that the medical home may benefit overall caregiver well-being. In particular, receiving care that was family centered and coordinated appeared to be the most beneficial. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|
Full Text from ScienceDirect