The Standardization of Uveitis Nomenclature (SUN) Project
| Autor: | Trusko, B., Thorne, J., Jabs, D., Belfort, R. [UNIFESP], Dick, A., Gangaputra, S., Nussenblatt, R., Okada, A., Rosenbaum, J., Standardization Uveitis Nomenclatu |
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| Přispěvatelé: | Mt Sinai Sch Med, Johns Hopkins Univ, Universidade Federal de São Paulo (UNIFESP), Univ Bristol, Univ Wisconsin, NEI, Kyorin Eye Ctr, Oregon Hlth & Sci Univ |
| Rok vydání: | 2013 |
| Předmět: |
medicine.medical_specialty
Pathology Delphi Technique 020205 medical informatics Standardization Classification criteria Delphi method Health Informatics 02 engineering and technology Health informatics Article Terminology Uveitis 03 medical and health sciences 0302 clinical medicine Health Information Management Health informatics tools Terminology as Topic Delphi technique 0202 electrical engineering electronic engineering information engineering Humans Medicine Medical physics 030212 general & internal medicine Advanced and Specialized Nursing Evidence-Based Medicine business.industry nominal group techniques Nominal group Evidence-based medicine Group Processes standardized terminology Informatics uveitis business Medical Informatics |
| Zdroj: | Repositório Institucional da UNIFESP Universidade Federal de São Paulo (UNIFESP) instacron:UNIFESP Methods Inf Med |
| ISSN: | 2511-705X 0026-1270 |
| DOI: | 10.3414/me12-01-0063 |
| Popis: | Background: Given the recent increased focus on evidence-based medicine, it is critical that diseases and syndromes have accurate and complete descriptions, including standardized and widely accepted terminologies. Standardizing these descriptions and terminologies is necessary to develop tools such as computerized data entry forms and classification criteria. This need is especially true for diseases that are relatively uncommon, such as uveitis.Objectives: To develop a standardized and internationally accepted terminology for the field of uveitis.Methods: the Standardization of Uveitis Nomenclature (SUN) Working Group (WG) is an international group of 79 uveitis experts from 18 countries and 62 clinical centers. Initial terminology was developed utilizing a modified green field approach, which was enhanced through web-based surveys and teleconferences via a modified Delphi technique. Terms were mapped provisionally into ontologic dimensions for each syndrome. the Working Group then met and utilized nominal group techniques as a formalized method of finalizing the mappings.Results: Mapping of terms into dimensions to describe 28 major uveitic diseases was confirmed using nominal group techniques (achieving super-majority consensus) for each of the diseases at a meeting of the entire WG.Conclusions: the SUN WG utilized an informatics-based approach to develop a standardized and internationally accepted terminology for the uveitides. Mt Sinai Sch Med, New York, NY 10029 USA Johns Hopkins Univ, Sch Med, Baltimore, MD USA Universidade Federal de São Paulo, Dept Ophthalmol, São Paulo, Brazil Univ Bristol, Bristol, Avon, England Univ Wisconsin, Madison, WI USA NEI, NIH, Bethesda, MD 20892 USA Kyorin Eye Ctr, Tokyo, Japan Oregon Hlth & Sci Univ, Portland, OR 97201 USA Universidade Federal de São Paulo, Dept Ophthalmol, São Paulo, Brazil Web of Science |
| Databáze: | OpenAIRE |
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