Patients’ views of routine quality of life assessment following a diagnosis of early-stage non-small cell lung cancer

Autor: Florien W. Boele, Beverly Clayton, Cecilia Pompili, Kate Absolom, Patricia Holch, Emma Smyllie, Galina Velikova, Kevin Franks
Rok vydání: 2020
Předmět:
Pulmonary and Respiratory Medicine
Longitudinal study
medicine.medical_specialty
Lung Neoplasms
Time Factors
020205 medical informatics
medicine.medical_treatment
media_common.quotation_subject
02 engineering and technology
Pulmonary Surgical Procedures
Literacy
03 medical and health sciences
0302 clinical medicine
Quality of life
Carcinoma
Non-Small-Cell Lung
Surveys and Questionnaires
0202 electrical engineering
electronic engineering
information engineering
medicine
Humans
Prospective Studies
Stage (cooking)
Lung cancer
Neoplasm Staging
media_common
Data collection
business.industry
medicine.disease
030220 oncology & carcinogenesis
Family medicine
Video-assisted thoracoscopic surgery
Quality of Life
Surgery
Observational study
Cardiology and Cardiovascular Medicine
business
Follow-Up Studies
Zdroj: Interactive CardioVascular and Thoracic Surgery. 31:324-330
ISSN: 1569-9285
DOI: 10.1093/icvts/ivaa123
Popis: OBJECTIVES There is an increasing interest in the quality of life (QoL) evaluation following video-assisted thoracoscopic anatomical lung resection or stereotactic ablative body radiotherapy for early-stage non-small-cell lung cancer (NSCLC). A qualitative interview study was conducted to gain insight into the optimal methods of assessing and discussing QoL in clinical practice. METHODS A prospective observational longitudinal study of patients with early-stage NSCLC was conducted where repeated QoL measures were administered either online or on paper. A subset of participants was invited for qualitative interviews after the 6-month assessment or at the end of the study. The semi-structured interviews were transcribed verbatim and thematically analysed. RESULTS Twenty-three patients were interviewed. Generally, patients were content with recruitment and data collection procedures. Most opted to complete the assessments on paper instead of online; this choice was influenced by the level of technology literacy. Some found the questionnaires too generic to reflect their experiences. Barriers to questionnaire completion were mostly practical, and many acknowledged benefits of QoL assessment including allowing them to express problems and health issues, and following changes over time. Generally, participants would like to discuss QoL results during clinical consultations, but reported this rarely happened. CONCLUSIONS Lung cancer patient interviews confirm the acceptability of repeated QoL assessments, but online data capture is limited. Patients highlight the importance of discussing QoL aspects with their clinical team. Future strategies are needed to optimize the routine collection of patient-reported outcomes in clinical practice.
Databáze: OpenAIRE
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