What Should a Support Program for People with Lung Cancer Look Like? Differing Attitudes of Patients and Support Group Facilitators
| Autor: | Carl Baravelli, Linda Mileshkin, Michael Jefford, Bianca Devitt, Penelope Schofield, Allison Hatton |
|---|---|
| Rok vydání: | 2010 |
| Předmět: |
Adult
Male Mesothelioma Pulmonary and Respiratory Medicine medicine.medical_specialty Lung Neoplasms Attitude of Health Personnel medicine.medical_treatment Support group Unmet needs Carcinoma Non-Small-Cell Lung Patient views medicine Humans Lung cancer Aged Aged 80 and over Response rate (survey) Health Services Needs and Demand business.industry Attendance Cancer Middle Aged Prognosis Support groups medicine.disease Small Cell Lung Carcinoma Self-Help Groups Oncology Family medicine Facilitator Community setting Female business Attitude to Health |
| Zdroj: | Journal of Thoracic Oncology. 5(8):1227-1232 |
| ISSN: | 1556-0864 |
| DOI: | 10.1097/jto.0b013e3181e004b2 |
| Popis: | IntroductionPatients with lung cancer have higher levels of unmet need for psychosocial support than those with other cancers. However, uptake of existing support programs by patients with lung cancer is low. We explored this issue by seeking the views of patients and support group facilitators.MethodsSurveys of a convenience sample of 100 patients with lung cancer and all support group facilitators registered with Cancer Council Victoria (n = 145) were performed. Respondents were asked about preferred content, location, running, and potential barriers to attendance of a lung cancer support program.ResultsThe response rate from facilitators was 51%. Fifty-three percent of patients reported willingness to attend a support program, although only 12% had previously attended a group. Patients showed a preference for any program to be held at a hospital (p = 0.01), whereas facilitators preferred a community setting (p < 0.001). Patients preferred facilitation by a health professional, rather than a volunteer p < 0.001), whereas facilitators preferred a volunteer. Patients preferred sessions primarily focused on cancer information provision rather than emotional support, whereas facilitators rated emotional support as highly as cancer information. Overall, patients perceived fewer barriers to attendance than facilitators. Both agreed that a group environment, discussing their cancer, parking, and travel were barriers to attendance.ConclusionsDisparities in the views of patients and facilitators about the preferred location, type of facilitator, and content of a support program may in part explain the poor uptake of existing support programs by patients with lung cancer and should be considered in the design of future programs. |
| Databáze: | OpenAIRE |
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