Social aspects of caregiving for people living with motor neurone disease: Their relationships to carer well-being
| Autor: | Roger M. Lowe, Anthony W. Love, Robin A. Ray, Rod Harris, Annette Street |
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| Rok vydání: | 2005 |
| Předmět: |
Adult
Male Multivariate analysis Adolescent Victoria Health Status media_common.quotation_subject Social support Surveys and Questionnaires Intervention (counseling) Perception medicine Humans Motor Neuron Disease health care economics and organizations General Nursing Aged media_common Response rate (survey) Palliative Care Social Support General Medicine Middle Aged medicine.disease humanities Psychiatry and Mental health Clinical Psychology Caregivers Social Class Population Surveillance Scale (social sciences) Well-being Regression Analysis Female Psychology Motor neurone disease Stress Psychological Clinical psychology |
| Zdroj: | Palliative and Supportive Care. 3:33-38 |
| ISSN: | 1478-9523 1478-9515 |
| DOI: | 10.1017/s1478951505050054 |
| Popis: | Objective:To investigate social aspects of caregiving for people living with motor neurone disease (MND) and examine their relationships to carers' well-being.Methods:A questionnaire was developed to assess carers' perceptions of their social support network (the Caregiver Network Scale, CNS), including measures of sociodemographic status and general well-being (GHQ-12), and mailed to carers of people living with MND.Results:Seventy-five surveys were returned (response rate: 33%). In univariate analyses, relationships between well-being and carer age, time as caregiver, and four subscales of the CNS were found to be significant. However, multivariate analyses combining their effects revealed that stress on carer social networks was the best single contributor to predictions of carer well-being.Significance of results:Results indicate that prolonged caring for others living with MND has substantial costs for the carer in terms of loss of social support, which affects carer well-being and impacts ultimately on those living with MND. The CNS offers promise as a measure for screening at-risk carers; those who are distressed become candidates for professional intervention to help them cope better. Further research, providing validation of the scale for this task, is recommended. |
| Databáze: | OpenAIRE |
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