Perspectives of Patients With Cancer on the Quality-Adjusted Life Year as a Measure of Value in Healthcare

Autor: Ellyn Charap, Joanne S. Buzaglo, Alexandra K Zaleta, Linda House, Helen M. Nichols, Elizabeth F. Franklin
Rok vydání: 2019
Předmět:
Adult
Male
Value (ethics)
Health Knowledge
Attitudes
Practice
medicine.medical_specialty
Adolescent
Patients
Cost-Benefit Analysis
media_common.quotation_subject
Young Adult
03 medical and health sciences
Survey methodology
0302 clinical medicine
Neoplasms
Health care
medicine
Humans
030212 general & internal medicine
Aged
Quality Indicators
Health Care
media_common
business.industry
030503 health policy & services
Health Policy
Public Health
Environmental and Occupational Health
Cancer
Health Care Costs
Awareness
Middle Aged
Quarter (United States coin)
medicine.disease
Quality-adjusted life year
Cross-Sectional Studies
Treatment Outcome
Family medicine
Quality of Life
Female
Quality-Adjusted Life Years
Health Expenditures
Comprehension
0305 other medical science
business
Patient awareness
Autonomy
Zdroj: Value in Health. 22:474-481
ISSN: 1098-3015
Popis: Objectives Healthcare expenditures in the United States continue to grow; to control costs, there has been a shift away from volume-focused care to value-based care. The incorporation of patient perspectives in the development of value-based healthcare is critical, yet research addressing this issue is limited. This study explores awareness and understanding of patients with cancer about the quality-adjusted life year (QALY), as well as their perspectives regarding the use of the QALY to measure value in healthcare. Methods This cross-sectional study used survey methodology to explore patient awareness, understanding, and perspectives on the QALY. A total of 774 patients with cancer and survivors completed this survey in June and July of 2017. Quantitative and qualitative analyses were conducted. Results Results showed that there is limited awareness of the QALY among patients with cancer and survivors and minimal understanding of how the QALY is used. Only one quarter of respondents believed that the QALY was a good way to measure value in healthcare. Some participants (5%) stated that the QALY could be personally helpful to them in their own decision making, indicating the possible usefulness of the QALY as a decision aid in cancer care. Nevertheless, participants expressed concern about other decision makers using the QALY to allocate cancer care and resources and maintained a strong desire for autonomy over personal healthcare choices. Conclusions Although participants believed that the QALY could help them make more informed decisions, there was concern about how it would be used by payers, policymakers, and other decision makers in determining access to care. Implications for policy and research are discussed.
Databáze: OpenAIRE
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