Urological chronic pelvic pain syndrome flares and their impact: qualitative analysis in the MAPP network

Autor: Karl J. Kreder, Aimee S. James, James Quentin Clemens, Chris Mullins, Katy S. Konkle, Sean Mackey, Catherine S. Bradley, Cody Ashe-McNalley, Siobhan Sutcliffe, Xiaoling Hou, Nancy A. Robinson, Sandra H. Berry, Edward Barrell, H. Henry Lai, Larissa V. Rodriguez
Rok vydání: 2015
Předmět:
Zdroj: International Urogynecology Journal. 26:1047-1060
ISSN: 1433-3023
0937-3462
DOI: 10.1007/s00192-015-2652-6
Popis: Although in-depth qualitative information is critical to understanding patients’ symptom experiences and to developing patient-centered outcome measures, only one previous qualitative study has assessed urological chronic pelvic pain syndrome (UCPPS) symptom exacerbations (“flares”). We conducted eight focus groups of female UCPPS (interstitial cystitis/bladder pain syndrome) patients at four sites from the MAPP Research Network (n = 57, mean = 7/group) to explore the full spectrum of flares and their impact on patients’ lives. Flare experiences were common and varied widely in terms of UCPPS symptoms involved, concurrent nonpelvic symptoms (e.g., diarrhea), symptom intensity (mild to severe), duration (minutes to years), and frequency (daily to
Databáze: OpenAIRE