The Danish severe asthma register: an electronic platform for severe asthma management and research
| Autor: | Karin Dahl Assing, Uffe Bodtger, Susanne Hansen, Anders Christiansen, Alexandra Wimmer-Aune, Niels Bjerring, Johannes Schmid, Charlotte Suppli Ulrik, Niels Steen Krogh, Ole Hilberg, Linda M. Rasmussen, Celeste Porsbjerg, Kirsten B. Rasmussen |
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| Rok vydání: | 2020 |
| Předmět: |
Pulmonary and Respiratory Medicine
Register (sociolinguistics) Severe asthma macromolecular substances Danish Diseases of the respiratory system immune system diseases medicine Outpatient clinic biological treatment real-life efficacy electronic patient record RC705-779 business.industry musculoskeletal neural and ocular physiology clinical decision-making tool medicine.disease severe asthma research language.human_language respiratory tract diseases nervous system language Medical emergency business Research Article |
| Zdroj: | Hansen, S, Hilberg, O, Ulrik, C S, Bodtger, U, Rasmussen, L M, Assing, K D, Wimmer-Aune, A, Rasmussen, K B, Bjerring, N, Christiansen, A, Schmid, J M, Krogh, N S & Porsbjerg, C 2021, ' The Danish severe asthma register : an electronic platform for severe asthma management and research ', European Clinical Respiratory Journal, vol. 8, no. 1, 1842117 . https://doi.org/10.1080/20018525.2020.1842117 Hansen, S, Hilberg, O, Ulrik, C S, Bodtger, U, M. Rasmussen, L, D. Assing, K, Wimmer-Aune, A, B. Rasmussen, K, Bjerring, N, Christiansen, A, Schmid, J, Krogh, N S & Porsbjerg, C 2021, ' The Danish severe asthma register : an electronic platform for severe asthma management and research ', European Clinical Respiratory Journal, vol. 8, no. 1, 1842117 . https://doi.org/10.1080/20018525.2020.1842117 Hansen, S, Hilberg, O, Ulrik, C S, Bodtger, U, M Rasmussen, L, D Assing, K, Wimmer-Aune, A, B Rasmussen, K, Bjerring, N, Christiansen, A, Schmid, J, Krogh, N S & Porsbjerg, C 2020, ' The Danish severe asthma register : an electronic platform for severe asthma management and research ', European Clinical Respiratory Journal, vol. 8, no. 1, pp. 1842117 . https://doi.org/10.1080/20018525.2020.1842117 European Clinical Respiratory Journal article-version (VoR) Version of Record European Clinical Respiratory Journal, Vol 8, Iss 1 (2021) |
| ISSN: | 2001-8525 |
| DOI: | 10.1080/20018525.2020.1842117 |
| Popis: | The evaluation and management of severe asthma patients require collection of comprehensive information, which is often a challenge in a busy outpatient clinic. The Danish Severe Asthma Register (DSAR) was designed as an electronic patient record form that captures operational clinical data and provides a clinical overview of the severe asthma patient. DSAR is a nationwide register; all patients in Denmark who are treated with biologics for severe asthma are included, and data are as a minimum entered at start of biological treatment, after four and 12 months of treatment, and hereafter annually. Currently, there are data from 621 treatment courses with biologics included in DSAR, with 71% of patients treated with anti-IL-5 drugs and 29% with an anti-IgE drug. Patients enter Patient Reported Outcome Measures electronically on tablets when they arrive in the outpatient clinic and their answers are immediately available to the clinician during the consultation. Nurses and doctors enter clinical data into DSAR during the consultation. DSAR offers immediate access to well-presented longitudinal overview and automatically creates a journal output that can be copy-pasted into the hospital’s existing health record form. DSAR is also currently expanding with an app, to be used for monitoring of home-treatment. In addition to serving as an electronic patient record form, DSAR will also provide opportunities to monitor the real-life efficacy of biological treatment for severe asthma in Denmark, and it will be a valuable research platform that will aid in answering important research questions on severe asthma in the future. |
| Databáze: | OpenAIRE |
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