Availability, coverage, and scope of health information systems for kidney care across world countries and regions
| Autor: | Sara N. Davison, Feng Ye, Csaba P. Kovesdy, Peter G. Kerr, Kailash K. Jindal, Irma Tchokhonelidze, Scott Klarenbach, Kamyar Kalantar-Zadeh, Vladimir Tesar, David Harris, Chih-Wei Yang, Laura Sola, Aminu K. Bello, Fergus Caskey, Mohammad Ghnaimat, Ikechi G. Okpechi, Adeera Levin, Brendon L. Neuen, Rumeyza Kazancioglu, David W. Johnson, Paul N. Harden, Gloria Ashuntantang, Vlado Perkovic, Eric Rondeau, Alexander Zemchenkov, Shahrzad Ossareh, Ming-Hui Zhao, Ezequiel Bellorin-Font, Htay Htay, Meaghan Lunney, Jeffrey Perl, Mohammed Benghanem Gharbi, Kriang Tungsanga, Vivekanand Jha, Mohamed A. Osman, Donal O'Donoghue, Emily J See, Harun Ur Rashid, Saad Syed, Marcello Tonelli, Kitty J Jager, Valerie A. Luyckx, Angela Yee-Moon Wang, John Feehally |
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| Přispěvatelé: | Medical Informatics, APH - Quality of Care, APH - Aging & Later Life, APH - Global Health, ACS - Pulmonary hypertension & thrombosis, KAZANCIOĞLU, RÜMEYZA |
| Jazyk: | angličtina |
| Rok vydání: | 2022 |
| Předmět: |
Nephrology
medicine.medical_specialty kidney replacement therapy Service delivery framework Disease Kidney Health informatics Chronic kidney disease Environmental health Internal medicine end-stage kidney disease medicine Humans kidney reoplacement therapy Renal Insufficiency Chronic Developing Countries Disease burden Response rate (survey) Transplantation business.industry Acute kidney injury registries medicine.disease Cross-Sectional Studies health information systems business chronic kidney disease Kidney disease |
| Zdroj: | Nephrology, dialysis, transplantation, 37(1):gfaa343, 159-167. Oxford University Press See, E J, Caskey, F, Johnson, D W & al., E 2020, ' Availability, coverage, and scope of health information systems for kidney care across world countries and regions ', Nephrology Dialysis Transplantation, vol. 2020, gfaa343 . https://doi.org/10.1093/ndt/gfaa343 |
| ISSN: | 0931-0509 |
| DOI: | 10.1093/ndt/gfaa343 |
| Popis: | Background Health information systems (HIS) are fundamental tools for the surveillance of health services, estimation of disease burden and prioritization of health resources. Several gaps in the availability of HIS for kidney disease were highlighted by the first iteration of the Global Kidney Health Atlas. Methods As part of its second iteration, the International Society of Nephrology conducted a cross-sectional global survey between July and October 2018 to explore the coverage and scope of HIS for kidney disease, with a focus on kidney replacement therapy (KRT). Results Out of a total of 182 invited countries, 154 countries responded to questions on HIS (85% response rate). KRT registries were available in almost all high-income countries, but few low-income countries, while registries for non-dialysis chronic kidney disease (CKD) or acute kidney injury (AKI) were rare. Registries in high-income countries tended to be national, in contrast to registries in low-income countries, which often operated at local or regional levels. Although cause of end-stage kidney disease, modality of KRT and source of kidney transplant donors were frequently reported, few countries collected data on patient-reported outcome measures and only half of low-income countries recorded process-based measures. Almost no countries had programs to detect AKI and practices to identify CKD-targeted individuals with diabetes, hypertension and cardiovascular disease, rather than members of high-risk ethnic groups. Conclusions These findings confirm significant heterogeneity in the global availability of HIS for kidney disease and highlight important gaps in their coverage and scope, especially in low-income countries and across the domains of AKI, non-dialysis CKD, patient-reported outcomes, process-based measures and quality indicators for KRT service delivery. |
| Databáze: | OpenAIRE |
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