The Experience of Persons With Multiple Sclerosis Using MS INFoRm: An Interactive Fatigue Management Resource
| Autor: | Penelope Smyth, Karen V. L. Turpin, Marcia Finlayson, Julie Pétrin, Nadine Akbar |
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| Rok vydání: | 2018 |
| Předmět: |
Gerontology
Adult Male 030506 rehabilitation Health Knowledge Attitudes Practice Multiple Sclerosis Psychological intervention Severity of Illness Index Interviews as Topic 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Resource (project management) medicine Humans Fatigue Qualitative Research Symptom management Multiple sclerosis Self-Management Public Health Environmental and Occupational Health Middle Aged medicine.disease Self Concept Self Efficacy Socioeconomic Factors Self care Quality of Life Female 0305 other medical science Psychology 030217 neurology & neurosurgery Patient education |
| Zdroj: | Qualitative health research. 28(5) |
| ISSN: | 1049-7323 |
| Popis: | We aimed to understand participants' experiences with a self-guided fatigue management resource, Multiple Sclerosis: An Interactive Fatigue Management Resource ( MS INFoRm), and the extent to which they found its contents relevant and useful to their daily lives. We recruited 35 persons with MS experiencing mild to moderate fatigue, provided them with MS INFoRm, and then conducted semistructured interviews 3 weeks and 3 months after they received the resource. Interpretive description guided the analysis process. Findings indicate that participants' experience of using MS INFoRm could be understood as a process of change, influenced by their initial reactions to the resource. They reported experiencing a shift in knowledge, expectations, and behaviors with respect to fatigue self-management. These shifts led to multiple positive outcomes, including increased levels of self-confidence and improved quality of life. These findings suggest that MS INFoRm may have a place in the continuum of fatigue management interventions for people with MS. |
| Databáze: | OpenAIRE |
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