The impact of ovarian cancer on individuals and their caregivers: A qualitative analysis
| Autor: | Louise Sharpe, Jit Hui Tan, Hayley Russell |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Adult
Male media_common.quotation_subject Psychological intervention Psycho-oncology Experimental and Cognitive Psychology Qualitative property Disease 03 medical and health sciences Social support Young Adult 0302 clinical medicine Humans 030212 general & internal medicine Qualitative Research media_common Aged Ovarian Neoplasms Australia Uncertainty Middle Aged Psychiatry and Mental health Distress Oncology Feeling Caregivers 030220 oncology & carcinogenesis Female Thematic analysis Psychology Clinical psychology |
| Zdroj: | Psycho-oncologyREFERENCES. 30(2) |
| ISSN: | 1099-1611 |
| Popis: | Objective Ovarian cancer remains an understudied cancer with poor prognosis, few effective treatments and little understanding of the how individuals and their families face the challenges and uncertainty following diagnosis. This study synthesized the subjective experiences of individuals and their caregivers in the face of the uncertainty produced by the disease. Methods Qualitative data were obtained from the Ovarian Cancer Australia 2017 Consumer Survey. An inductive thematic analysis was conducted on responses from 219 individuals with ovarian cancer and 78 caregivers. Results Nine themes were identified from the individual's responses and seven themes from the caregivers. For both groups, the uncertainty created at diagnosis led to a cascade of complex responses. For the individuals, uncertainty gave rise to fears for the future, which were exacerbated by unmet healthcare needs or treatment-related difficulties. For some individuals, these fears led to disruption to their lives, isolation and emotional distress. For others, helpful coping styles and social support protected them from these negative consequences. For caregivers, the processes were similar, but uncertainty predominantly led to feelings of hopelessness and "survivor guilt." Conclusions Our results identified processes that may guide future interventions and research targeting unmet needs and protective factors for individuals with ovarian cancer and their caregivers. Findings also suggest the potential to facilitate effective support between individuals and their caregivers. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|
Plný text