Reporting to parents on children’s exposures to asthma triggers in low-income and public housing, an interview-based case study of ethics, environmental literacy, individual action, and public health benefits

Autor:	Ohayon, Jennifer L, Cousins, Elicia M, Morello-Frosch, Rachel, Brown, Phil, Adamkiewicz, Gary, Brody, Julia G, Perovich, Laura J., Ohayon, Jennifer Liss, Cousins, Elicia Mayuri, Brody, Julia Green, Perovich, Laura Jones
Přispěvatelé:	Massachusetts Institute of Technology. Media Laboratory, Perovich, Laura Jones
Jazyk:	angličtina
Rok vydání:	2018
Předmět:	0301 basic medicine Parents Male Health Toxicology and Mutagenesis 010501 environmental sciences Return of results Toxicology 01 natural sciences Literacy Risk communication 11. Sustainability Child Lung media_common Pediatric lcsh:Public aspects of medicine 3. Good health Public Health and Health Services lcsh:Industrial medicine. Industrial hygiene Female Public Health Patient Safety Psychology medicine.medical_specialty Public housing media_common.quotation_subject Community-based participatory research Basic Behavioral and Social Science Interviews as Topic Research ethics 03 medical and health sciences lcsh:RC963-969 Clinical Research Behavioral and Social Science medicine Humans Cities 0105 earth and related environmental sciences Ohio Government Medical education Public Housing Research 030111 toxicology Public health Prevention Stressor Public Health Environmental and Occupational Health lcsh:RA1-1270 Environmental Exposure Asthma Biomonitoring Exposure assessment Environmental health literacy Generic health relevance Boston
Zdroj:	Environmental Health, Vol 17, Iss 1, Pp 1-12 (2018) BioMed Central Environmental health : a global access science source, vol 17, iss 1 Perovich, LJ; Ohayon, JL; Cousins, EM; Morello-Frosch, R; Brown, P; Adamkiewicz, G; et al.(2018). Reporting to parents on children's exposures to asthma triggers in low-income and public housing, an interview-based case study of ethics, environmental literacy, individual action, and public health benefits. Environmental Health: A Global Access Science Source, 17(1). doi: 10.1186/s12940-018-0395-9. UC Berkeley: Retrieved from: http://www.escholarship.org/uc/item/0xk2h5tb Environmental Health
Popis:	Background Emerging evidence about the effects of endocrine disruptors on asthma symptoms suggests new opportunities to reduce asthma by changing personal environments. Right-to-know ethics supports returning personal results for these chemicals to participants, so they can make decisions to reduce exposures. Yet researchers and institutional review boards have been reluctant to approve results reports in low-income communities, which are disproportionately affected by asthma. Concerns include limited literacy, lack of resources to reduce exposures, co-occurring stressors, and lack of models for effective reporting. To better understand the ethical and public health implications of returning personal results in low-income communities, we investigated parents’ experiences of learning their children’s environmental chemical and biomonitoring results in the Green Housing Study of asthma. Methods The Green Housing Study measured indoor chemical exposures, allergens, and children’s asthma symptoms in “green”-renovated public housing and control sites in metro-Boston and Cincinnati in 2011–2013. We developed reports for parents of children in the study, including results for their child and community. We observed community meetings where results were reported, and metro-Boston residents participated in semi-structured interviews in 2015 about their report-back experience. Interviews were systematically coded and analyzed. Results Report-back was positively received, contributed to greater understanding, built trust between researchers and participants, and facilitated action to improve health. Sampling visits and community meetings also contributed to creating a positive study experience for participants. Participants were able to make changes in their homes, such as altering product use and habits that may reduce asthma symptoms, though some faced roadblocks from family members. Participants also gained access to medical resources, though some felt that clinicians were not responsive. Participants wanted larger scale change from government or industry and wanted researchers to leverage study results to achieve change. Conclusions Report-back on environmental chemical exposures in low-income communities can enhance research benefits by engaging residents with personally relevant information that informs and motivates actions to reduce exposure to asthma triggers. Ethical practices in research should support deliberative report-back in vulnerable communities. Electronic supplementary material The online version of this article (10.1186/s12940-018-0395-9) contains supplementary material, which is available to authorized users.
Databáze:	OpenAIRE
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