Characterizing health researcher barriers to sharing results with study participants
| Autor: | Christopher R. Long, Kim S. Kimminau, Mark R. Burge, Aaron Scott, Robert L. Rhyne, Rachel S. Purvis, Laura P. James, Elizabeth Flood-Grady, Pearl A. McElfish |
|---|---|
| Rok vydání: | 2019 |
| Předmět: |
results sharing
Medical education barriers media_common.quotation_subject Face (sociological concept) Dissemination General Medicine Basic and Preclinical Research 3. Good health 03 medical and health sciences 0302 clinical medicine Promotion (rank) Incentive 030220 oncology & carcinogenesis Clinical and Translational Science Award research communication 030212 general & internal medicine Return of results Psychology Research dissemination Research Article engagement media_common |
| Zdroj: | Journal of Clinical and Translational Science |
| ISSN: | 2059-8661 |
| DOI: | 10.1017/cts.2019.409 |
| Popis: | Introduction:Research participants want to receive results from studies in which they participate. However, health researchers rarely share the results of their studies beyond scientific publication. Little is known about the barriers researchers face in returning study results to participants.Methods:Using a mixed-methods design, health researchers (N = 414) from more than 40 US universities were asked about barriers to providing results to participants. Respondents were recruited from universities with Clinical and Translational Science Award programs and Prevention Research Centers.Results:Respondents reported the percent of their research where they experienced each of the four barriers to disseminating results to participants: logistical/methodological, financial, systems, and regulatory. A fifth barrier, investigator capacity, emerged from data analysis. Training for research faculty and staff, promotion and tenure incentives, and funding agencies supporting dissemination of results to participants were solutions offered to overcoming barriers.Conclusions:Study findings add to literature on research dissemination by documenting health researchers’ perceived barriers to sharing study results with participants. Implications for policy and practice suggest that additional resources and training could help reduce dissemination barriers and increase the return of results to participants. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|