Acta Diabetol
| Autor: | Jean-Paul Bellamy, John Conrath, Sarah Mrejen, Stéphanie Baillif, Maria Hobeika, Marie-Noëlle Delyfer, Franck Fajnkuchen, Cyril Meillon, Bénédicte Dupas, Pierre Bonicel, Audrey Giocanti-Auregan, Amélie Lecleire-Collet, Mayer Srour |
|---|---|
| Přispěvatelé: | Bordeaux population health (BPH), Université de Bordeaux (UB)-Institut de Santé Publique, d'Épidémiologie et de Développement (ISPED)-Institut National de la Santé et de la Recherche Médicale (INSERM) |
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Adult
Male Pediatrics medicine.medical_specialty Activities of daily living Endocrinology Diabetes and Metabolism media_common.quotation_subject Diabetic macular edema Visual Acuity 030209 endocrinology & metabolism Angiogenesis Inhibitors Disease 030204 cardiovascular system & hematology Macular Edema LEHA 03 medical and health sciences 0302 clinical medicine Endocrinology Diabetes mellitus Surveys and Questionnaires Internal Medicine medicine Humans Macular edema media_common Aged Motivation Diabetic Retinopathy business.industry Mean age Patient Preference General Medicine Diabetic retinopathy Fear Middle Aged medicine.disease 3. Good health Cross-Sectional Studies Feeling Child Preschool Intravitreal Injections Patient Compliance Female [SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie France business |
| Zdroj: | Acta Diabetologica Acta Diabetologica, Springer Verlag, In press, 57 (9), pp.1081-1091. ⟨10.1007/s00592-020-01513-9⟩ |
| ISSN: | 0940-5429 1432-5233 |
| Popis: | AimsClinical outcomes of diabetic macular edema (DME) have been widely described, but data on diabetic retinopathy perceptions by diabetes patients are limited. The aim of this survey was to explore the lived experience, knowledge, fears and expectations about disease, and treatment in patients with diabetes and macular edema treated with intravitreal injections (IVTI) and to characterize patient profiles.MethodsCross-sectional survey including a preliminary qualitative phase (20 patients with DME, treated or treatment-naive, 5 female and 15 male, age 36–74 years) followed by a quantitative survey (116 patients treated with IVTI for DME). Data ASKIA Analyze (version 5.3.3.5) was used for descriptive statistics, and R software (version 3.4.1) for multiple correspondence analysis.ResultsThe qualitative phase identified the wording used by patients and information helpful to propose modalities of response in the quantitative phase. In the quantitative survey (116 patients, mean age 66.6 years), most patients were treated with anti-vascular endothelial growth factor. Overall, 71.9% reported that the disease negatively affected their daily activities and 33.1% considered that regular visits to the ophthalmologist were disrupting their life. Treatment expectations differed significantly between patients in terms of disease experience (visit and injection schedules), fears and feelings, and relationship with physicians, allowing three patient profiles to be identified: “Worried” patients (n = 45) felt isolated and were worried about the need for repeated treatment and possible side effects. They were mainly active men aged 2 years; “Curious” patients (n = 21) experienced insufficient support and requested more information on their disease and existing treatments. They were mainly single women aged 60–69 years; “Passive” patients (n = 50) felt sufficiently informed by their ophthalmologist and were not concerned by DME. They were older (mean age: 70 years) and mainly type 2 diabetic men.ConclusionsPatients with diabetes and macular edema treated with IVTI form a heterogeneous group regarding fears and expectations. Different patient profiles were identified and need to be confirmed in larger studies. A better understanding of psychological profiles may optimize compliance of diabetic patients. |
| Databáze: | OpenAIRE |
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