In-Depth Interviews to Assess the Relevancy and Fit of a Peer-Mentored Intervention for Transition-Age Youth with Chronic Medical Conditions
| Autor: | Blanca E. Sanchez-Fournier, Albert C. Hergenroeder, Jean L. Raphael, Beth H. Garland, Mickayla D. Jones, Sarah C. Graham, Jacqueline M. Benavides, Constance M. Wiemann |
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| Rok vydání: | 2020 |
| Předmět: |
Male
Parents Transition to Adult Care congenital hereditary and neonatal diseases and abnormalities Adolescent Motivational interviewing Anxiety Pediatrics Peer Group Interviews as Topic Young Adult 03 medical and health sciences 0302 clinical medicine Rating scale 030225 pediatrics Health care medicine Humans Competence (human resources) Self-determination theory 030504 nursing Depression business.industry Mentors Mental health Self Care Mental Health Caregivers Chronic Disease Female Thematic analysis medicine.symptom 0305 other medical science Psychology business Clinical psychology |
| Zdroj: | Journal of Pediatric Nursing. 50:121-127 |
| ISSN: | 0882-5963 |
| DOI: | 10.1016/j.pedn.2019.04.028 |
| Popis: | Study purpose The purpose of this study is to evaluate the relevancy and fit of a proposed group-based, peer-mentored intervention, based on the principles of Self-Determination Theory (SDT), to facilitate the development of health self-management skills needed to transition from pediatric to adult-based healthcare. Design and methods Individual in-depth interviews with 28 transition-age youth (TAY) ages 17–22 and 24 caregivers (parents) from Gastroenterology, Renal and Rheumatology clinical services assessed interests in and preferred content, timing of and format for an intervention to help youth build self-management skills. Descriptive statistics were used for short answer questions and rating scales. Thematic analysis was used to analyze transcripts. Results >90% of TAY and all caregivers thought the proposed group-based transition skills-building intervention was a good idea. TAY expressed wanting someone with lived experience to lead it and a desire to meet other youth with chronic conditions. All caregivers would want their TAY to participate if given the opportunity. Both TAY and caregivers voiced the importance of mental health topics as many TAY experienced anxiety or depression over managing their illness. Nearly 50% of TAY and caregivers thought parents should attend some or all group sessions, though TAY and caregivers within the same family did not always agree. Conclusions Findings establish the relevancy and fit of a peer-mentored intervention focused on skill development to successfully transition to adult healthcare. Practice implications The group intervention designed using a SDT framework may be particularly relevant as autonomy, competence, and relatedness undergo major developmental changes during adolescence. |
| Databáze: | OpenAIRE |
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