Living with Huntington's disease: illness perceptions, coping mechanisms, and spouses' quality of life
Autor: | Desirée I. Helder, G. M. J. van Kempen, Raymund A.C. Roos, J.C. van Houwelingen, John Weinman, Ad A. Kaptein |
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Rok vydání: | 2002 |
Předmět: |
Male
Coping (psychology) medicine.medical_specialty Disease Illness perceptions Huntington's disease Quality of life Cost of Illness Adaptation Psychological medicine Humans Psychiatry Spouses Applied Psychology Family Health Sick Role Middle Aged medicine.disease Health psychology Huntington Disease Caregivers Spouse Behavioral medicine Quality of Life Female Psychology Attitude to Health Clinical psychology |
Zdroj: | International journal of behavioral medicine. 9(1) |
ISSN: | 1070-5503 |
Popis: | Chronic illness not only affects the life of those suffering from Huntington's disease but also threatens the quality of life (QOL) of their spouses. In this study, we focus on Huntington's disease (HD). The impact of HD on the QOL of spouses has been hardly studied from a behavioral medicine or health psychology perspective. We hypothesize that spouses' illness perceptions and coping mechanisms will contribute significantly to the prediction of their QOL. Illness perceptions, coping mechanisms, and the QOL of 90 spouses of patients with HD were assessed by means of the Illness Perception Questionnaire, the COPE, and the Medical Outcome Study 36-item Short Form Health Survey, respectively. After controlling for demographic and illness-related variables, coping mechanisms explained a significant amount of variance of spouses' role functioning. Given our results, more empirical and longitudinal research is justified on coping mechanisms and illness perceptions of spouses living with Huntington's disease. |
Databáze: | OpenAIRE |
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