Burden and Preparedness amongst Informal Caregivers of Adults with Moderate to Severe Traumatic Brain Injury
| Autor: | Julia Schmidt, Kirsten Lieshout, Ian D. Cameron, Carolyn A. Unsworth, Joanne Oates, Anne Baker, Natasha A. Lannin |
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| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
Adult
Male Moderate to severe Gerontology caregivers 030506 rehabilitation Traumatic brain injury Health Toxicology and Mutagenesis Caregiver Burden lcsh:Medicine Logistic regression Article burden Cohort Studies 03 medical and health sciences 0302 clinical medicine Brain Injuries Traumatic medicine Humans Uncategorized business.industry traumatic brain injury lcsh:R Public Health Environmental and Occupational Health Caregiver burden medicine.disease Cross-Sectional Studies Scale (social sciences) Preparedness Female Self Report 0305 other medical science business 030217 neurology & neurosurgery Dyad Cohort study |
| Zdroj: | International Journal of Environmental Research and Public Health, Vol 17, Iss 6386, p 6386 (2020) International Journal of Environmental Research and Public Health Volume 17 Issue 17 |
| DOI: | 10.14288/1.0394260 |
| Popis: | This study examined the patterns of informal (unpaid) caregiving provided to people after moderate to severe traumatic brain injury (TBI), explore the self-reported burden and preparedness for the caregiving role, and identify factors predictive of caregiver burden and preparedness. A cross-sectional cohort design was used. Informal caregivers completed the Demand and Difficulty subscales of the Caregiving Burden Scale and the Mutuality, Preparedness, and Global Strain subscales of the Family Care Inventory. Chi-square tests and logistic regression were used to examine the relationships between caregiver and care recipient variables and preparedness for caregiving. Twenty-nine informal caregivers who reported data on themselves and people with a moderate to severe TBI were recruited (referred to as a dyad). Most caregivers were female (n = 21, 72%), lived with the care recipient (n = 20, 69%), and reported high levels of burden on both scales. While most caregivers (n = 21, 72%) felt &ldquo pretty well&rdquo or &ldquo very well&rdquo prepared for caregiving, they were least prepared to get help or information from the health system, and to deal with the stress of caregiving. No significant relationships or predictors for caregiver burden or preparedness were identified. While caregivers reported the provision of care as both highly difficult and demanding, further research is required to better understand the reasons for the variability in caregiver experience, and ultimately how to best prepare caregivers for this long-term role. |
| Databáze: | OpenAIRE |
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