Engaging Limited English Proficient and Ethnically Diverse Low-Income Women in Health Research: A Randomized Trial of a Patient Navigator Intervention
| Autor: | Catherine Lawlor, Galen Joseph, S Colen, Nancy J. Burke, Janice Cheng, Alyssa Nickell, Elly Cohen, Susan L. Stewart, Claudia Guerra |
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| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
Biomedical Research
Disparities Medical and Health Sciences law.invention 0302 clinical medicine Clinical trials Randomized controlled trial law Information seeking behavior Surveys and Questionnaires Patient navigation 030212 general & internal medicine Prospective Studies CBPR Empowerment media_common Cancer 030503 health policy & services General Medicine Health Services Middle Aged Community based participatory research Female Public Health 0305 other medical science medicine.medical_specialty Limited English Proficiency media_common.quotation_subject Clinical Trials and Supportive Activities Community-based participatory research Context (language use) Breast Neoplasms Basic Behavioral and Social Science Article Access to Information Interviews as Topic 03 medical and health sciences Breast cancer Clinical Research Intervention (counseling) Behavioral and Social Science medicine Humans Patient Navigation Poverty Aged business.industry Psychology and Cognitive Sciences LEP Limited English proficient medicine.disease Clinical trial Good Health and Well Being Family medicine Information-Seeking behavior business |
| Zdroj: | Patient Educ Couns Patient education and counseling, vol 102, iss 7 |
| Popis: | Objective Evaluate a community-based navigator intervention to increase breast cancer patients’ and survivors’ access to information about health research participation opportunities. Methods In the context of a Community Based Participatory Research collaboration, we conducted a prospective randomized controlled trial of the Health Research Engagement Intervention with pre- and post-intervention surveys (n = 133). The primary outcome was health research information-seeking behavior. Secondary outcomes were health research knowledge, willingness to participate in health research, and health empowerment. Qualitative interviews (n = 11) elucidated participant perspectives on the intervention. Results There was no statistically significant difference between intervention and control groups’ information-seeking behavior. Knowledge that not all health research studies are about drugs or treatments increased significantly from pre- to post-test among intervention group participants (32% to 48%, p = 0.012), but not in the control group (43% to 30%, p = 0.059); the difference between arms was statistically significant (p = 0.0012). Although survey responses indicated willingness to participate, qualitative interviews identified competing priorities that limited participants’ motivation to seek enrollment information. Conclusions and Practice Implications Community-based navigators are a trusted, and therefore promising link between health research and low-income underserved communities. However, systemic barriers in health research infrastructures need to be addressed to include low income, LEP and immigrant populations. |
| Databáze: | OpenAIRE |
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