Informatics-enabled citizen science to advance health equity
| Autor: | Courtney C. Rogers, Katherine K. Kim, Karen C Waters-Wicks, Philip E. Bourne, Don E. Detmer, Rupa S. Valdez, Robin R. Austin, Anna McCollister |
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| Rok vydání: | 2021 |
| Předmět: |
Community-Based Participatory Research
Informatics AcademicSubjects/SCI01060 Participatory action research Health Informatics Population health Medical and Health Sciences Health informatics Engineering Information and Computing Sciences citizen science Citizen science Humans Democratization Sociology health informatics Pandemics AcademicSubjects/MED00580 health equity Citizen Science Health Equity patient engagement business.industry COVID-19 Public relations precision health Health equity Transformative learning Perspective AcademicSubjects/SCI01530 business Medical Informatics |
| Zdroj: | Journal of the American Medical Informatics Association : JAMIA, vol 28, iss 9 Journal of the American Medical Informatics Association : JAMIA |
| ISSN: | 1527-974X |
| Popis: | The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations. |
| Databáze: | OpenAIRE |
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