Genetic Risk of Alzheimer’s Disease: Three Wishes Now That the Genie is Out of the Bottle
| Autor: | J. Wesson Ashford, Donna Cohen, Richard E. Powers, Soo Borson, George Perry, Lori Frank, Herman Buschke, Sanford I. Finkel, Jeffrey L. Cummings, Peter J. Bayley, Margaret Dean, Frederick A. Schmitt, Lee Hyer, Peter Davies |
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| Rok vydání: | 2018 |
| Předmět: |
Process (engineering)
Genetic counseling Apolipoprotein E4 Internet privacy Disease genetic risk 03 medical and health sciences 0302 clinical medicine Alzheimer Disease Risk Factors medicine Humans Genetic Predisposition to Disease Genetic Testing 030212 general & internal medicine Genetic testing medicine.diagnostic_test business.industry General Neuroscience late-onset Alzheimer’s disease General Medicine Popularity Test (assessment) Clinical trial Psychiatry and Mental health Clinical Psychology Editorial Action (philosophy) Geriatrics and Gerontology Psychology business APOE 030217 neurology & neurosurgery |
| Zdroj: | Journal of Alzheimer's Disease |
| ISSN: | 1875-8908 1387-2877 |
| Popis: | The availability and increasing popularity of direct-to-consumer genetic testing for the presence of an APOE4 allelle led the Alzheimer's Foundation of America Medical, Scientific and Memory Screening Advisory Board to identify three critical areas for attention: 1) ensure consumer understanding of test results; 2) address and limit potential negative consequences of acquiring this information; and 3) support linking results with positive health behaviors, including potential clinical trial participation. Improving access to appropriate sources of genetic counseling as part of the testing process is critical and requires action from clinicians and the genetic testing industry. Standardizing information and resources across the industry should start now, with the input of consumers and experts in genetic risk and health information disclosure. Direct-to-consumer testing companies and clinicians should assist consumers by facilitating consultation with genetic counselors and facilitating pursuit of accurate information about testing. |
| Databáze: | OpenAIRE |
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