Uses, limitations, and validity of a registry of congenital anomalies in Iran: a critical review
| Autor: | Hossein Abdollahi, Shahin Imani, Saeed Dastgiri, David H. Stone, Mohammad Heidarzadeh, Mohammad Hassan Kargar Maher |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
medicine.medical_specialty
Pediatrics Article Subject Health Toxicology and Mutagenesis Service provision Developing country Iran Congenital Abnormalities 03 medical and health sciences 0302 clinical medicine Epidemiology medicine Humans 030212 general & internal medicine Registries 030219 obstetrics & reproductive medicine Data collection business.industry lcsh:Public aspects of medicine Public Health Environmental and Occupational Health lcsh:RA1-1270 Monitoring system medicine.disease Population Surveillance Pilot model Medical emergency business Research Article |
| Zdroj: | Journal of Environmental and Public Health Journal of Environmental and Public Health, Vol 2017 (2017) |
| ISSN: | 1687-9805 |
| Popis: | Background and Aims. Preventive strategies of congenital anomalies are basically relying on the systematic ongoing collection and analysis of data and timely dissemination of information. The aim of this paper is to briefly report a critical review of a surveillance system of congenital anomalies in a developing country, by describing the challenges and experience of the registry since it began. Methods. Tabriz Registry of Congenital Anomalies (TRoCA) was mainly set up based on the guidelines provided by the International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR) for data collection, coding, process, analysis, use, and evaluation of the system. Findings. TRoCA has successfully achieved its main objective as a pilot model for setting up a nationwide registry of congenital anomalies in the country. The programme has too succeeded in relation to its regional objectives: epidemiological rates and data have been produced consistently for etiological investigations, methodological studies, service provision, and preventive measures for selected anomalies. Conclusions. Our successful experience, as a small registry in a developing country, might be of interest and useful to practitioners, policymakers of birth defects control programmes, and mainly those willing to set up a monitoring system of congenital anomalies in similar areas. |
| Databáze: | OpenAIRE |
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