Experiences with information provision and preferences for decision making of patients with acute stroke
| Autor: | I A Deijle, Ritu Saxena, R M Van den Berg-Vos, C.F. van Uden-Kraan, V J Zonjee, P.J. van der Wees, P. J. A. M. Brouwers, R Dahmen, J. C. M. Prick, M M Garvelink, S H J Keus, S. M. van Schaik |
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| Přispěvatelé: | Neurology, ANS - Neurovascular Disorders |
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
medicine.medical_specialty
Decision Making Patient engagement Patient-centred care Healthcare improvement science Radboud Institute for Health Sciences [Radboudumc 18] Surveys and Questionnaires Medicine Humans Patient empowerment Stroke Information provision Shared decision making Acute stroke Acute stroke care business.industry General Medicine Patient education After discharge medicine.disease Hospitalization Family medicine Cohort Structured interview Patient Participation business |
| Zdroj: | Patient education and counseling. Elsevier Ireland Ltd Patient Education and Counseling, 105, 5, pp. 1123-1129 Patient Education and Counseling, 105, 1123-1129 |
| ISSN: | 0738-3991 |
| Popis: | Contains fulltext : 251103.pdf (Publisher’s version ) (Open Access) OBJECTIVE: The aim of this study was to gain insight into experiences of patients with acute stroke regarding information provision and their preferred involvement in decision-making processes during the initial period of hospitalisation. METHODS: A sequential explanatory design was used in two independent cohorts of patients with stroke, starting with a survey after discharge from hospital (cohort 1) followed by observations and structured interviews during hospitalisation (cohort 2). Quantitative data were analysed descriptively. RESULTS: In total, 72 patients participated in this study (52 in cohort 1 and 20 in cohort 2). During hospitalisation, the majority of the patients were educated about acute stroke and their treatment. Approximately half of the patients preferred to have an active role in the decision-making process, whereas only 21% reported to be actively involved. In cohort 2, 60% of the patients considered themselves capable to carefully consider treatment options. CONCLUSIONS: Active involvement in the acute decision-making process is preferred by approximately half of the patients with acute stroke and most of them consider themselves capable of doing so. However, they experience a limited degree of actual involvement. PRACTICE IMPLICATIONS: Physicians can facilitate patient engagement by explicitly emphasising when a decision has to be made in which the patient's opinion is important. |
| Databáze: | OpenAIRE |
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