Bereaved mothers’ and fathers’ perceptions of a legacy intervention for parents of infants in the NICU

Autor:	K Adelstein, A Randall, A Hord, M J Gilmer, T F Akard, A Sanders, U E Anani, M Duffy
Rok vydání:	2018
Předmět:	Adult Male Coping (psychology) Neonatal intensive care unit Perinatal Death media_common.quotation_subject Video Recording Psychological intervention Mothers Developmental psychology Fathers Young Adult 03 medical and health sciences 0302 clinical medicine Intensive Care Units Neonatal Perception Adaptation Psychological Photography Humans Medicine 030212 general & internal medicine media_common Digital storytelling business.industry Infant Newborn Focus Groups Focus group Infant mortality 030220 oncology & carcinogenesis Pediatrics Perinatology and Child Health Female Grief business Bereavement
Zdroj:	Journal of Neonatal-Perinatal Medicine. 11:21-28
ISSN:	1878-4429 1934-5798
Popis:	Background Legacy-making, actions or behaviors aimed at being remembered, may be one strategy to enhance coping and improve grief outcomes for bereaved parents and siblings. While legacy interventions have been developed and tested in pediatric and adult populations, legacy activities specific to bereaved parents in the neonatal intensive care unit remain unexplored. This study explored bereaved parents' perceptions of a digital storytelling legacy-making intervention for parents after the death of an infant. Methods Six bereaved mothers and fathers participated in a focus group interview three to 12 months after the death of an infant in the NICU. A semi-structured interview guide with open-ended questions was used to obtain parent self-reports. Qualitative content analysis identified emerging themes. Results Four major themes emerged regarding participants' perceptions of a legacy intervention: (a) parents' willingness to participate in a legacy intervention, (b) parents' suggestions for a feasible intervention, (c) parents' suggestions for an acceptable intervention, and (d) parents' perceived benefits of legacy-making. Conclusions Participants reported that a legacy-making intervention via digital storytelling would be feasible, acceptable, and beneficial for NICU parents. Study results support the need and desire for legacy-making services to be developed and offered in the NICU.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ed8f8b747a9e99360fe151eff68ecb59 https://doi.org/10.3233/npm-181732 Zobrazit plný text záznamu Plný text ve formátu PDF Plný text ve formátu HTML
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