The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Autor: Pierre Quartier, Richard Mouy, Florence Uettwiller, Nicolino Ruperto, Michael Hofer, Ngoc-Phoi Duong, Isabelle Melki, Francesca Bovis, Brigitte Bader-Meunier, Thi Thanh Thao Truong, Carine Wouters, Alessandro Consolaro, Kokou-Placide Agbo-Kpati
Přispěvatelé: Paediatric Rheumatology International Trials Organisation (PRINTO)
Rok vydání: 2018
Předmět:
Male
Parents
Disease status
Adolescent
Patients
Psychometrics
Health Status
Health-related quality of life
Immunology
Multidimensional assessment
Arthritis
Functional ability
JAMAR
Juvenile idiopathic arthritis
Rheumatology
Immunology and Allergy
Disability Evaluation
03 medical and health sciences
0302 clinical medicine
Predictive Value of Tests
030225 pediatrics
Humans
Juvenile
Medicine
Patient Reported Outcome Measures
Validation Studies
Age of Onset
Child
Arthritis
Juvenile/diagnosis
Arthritis
Juvenile/physiopathology
Arthritis
Juvenile/psychology
Arthritis
Juvenile/therapy
Case-Control Studies
Child
Preschool
Cultural Characteristics
Female
France
Parents/psychology
Patients/psychology
Prognosis
Quality of Life
Reproducibility of Results
Rheumatology/methods
Translating
030203 arthritis & rheumatology
Health related quality of life
business.industry
medicine.disease
Arthritis
Juvenile
business
Clinical psychology
Zdroj: Rheumatology international, vol. 38, no. Suppl 1, pp. 195-201
Rheumatology International
ISSN: 1437-160X
0172-8172
DOI: 10.1007/s00296-018-3951-2
Popis: The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the French language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations and construct validity (convergent and discriminant validity). A total of 100 JIA patients (23% systemic, 45% oligoarticular, 20% RF negative polyarthritis, 12% other categories) and 122 healthy children, were enrolled at the paediatric rheumatology centre of the Necker Children's Hospital in Paris. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the French version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research. ispartof: Rheumatology International vol:38 issue:Suppl 1 pages:195-201 ispartof: location:Germany status: published
Databáze: OpenAIRE
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