International Spinal Cord Injury Core Data Set (version 2.0)-including standardization of reporting
| Autor: | Fin Biering-Sørensen, Vanessa K. Noonan, Peter W New, Michael J. DeVivo, L C Vogel, Susan Charlifue, Marcel W M Post, Yuying Chen |
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| Přispěvatelé: | Extremities Pain and Disability (EXPAND) |
| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
030506 rehabilitation
medicine.medical_specialty Internationality Standardization Epidemiology medicine.medical_treatment Population MEDLINE Datasets as Topic 03 medical and health sciences 0302 clinical medicine Medical research medicine Journal Article Humans EPIDEMIOLOGY Data reporting education Spinal cord injury Spinal Cord Injuries education.field_of_study Data collection Rehabilitation business.industry Data Collection LENGTH-OF-STAY General Medicine medicine.disease ETIOLOGY Neurology Research Design Physical therapy NEUROLOGICAL CLASSIFICATION Neurology (clinical) 0305 other medical science Paraplegia business 030217 neurology & neurosurgery |
| Zdroj: | Spinal Cord, 55(8), 759-764. Nature Publishing Group Spinal Cord, 55(8), 759. Nature Publishing Group |
| ISSN: | 1362-4393 |
| DOI: | 10.1038/sc.2017.59 |
| Popis: | Study design: The study design includes expert opinion, feedback, revisions and final consensus.Objectives: The objective of the study was to present the new knowledge obtained since the International Spinal Cord Injury (SCI) Core Data Set (Version 1.0) published in 2006, and describe the adjustments made in Version 2.0, including standardization of data reporting.Setting: International.Methods: Comments received from the SCI community were discussed in a working group (WG); suggestions from the WG were reviewed and revisions were made. All suggested revisions were considered, and a final version was circulated for final approval.Results: The International SCI Core Data Set (Version 2.0) consists of 25 variables. Changes made to this version include the deletion of one variable 'Total Days Hospitalized' and addition of two variables 'Date of Rehabilitation Admission' and 'Date of Death.' The variable 'Injury Etiology' was extended with six non-traumatic categories, and corresponding 'Date of Injury' for non-traumatic cases, was defined as the date of first physician visit for symptoms related to spinal cord dysfunction. A category reflecting transgender was added. A response category was added to the variable on utilization of ventilatory assistance to document the use of continuous positive airway pressure for sleep apnea. Other clarifications were made to the text. The reporting of the pediatric SCI population was updated as age groups 0-5, 6-12, 13-14, 15-17 and 18-21.Conclusion: Collection of the core data set should be a basic requirement of all studies of SCI to facilitate accurate descriptions of patient populations and comparison of results across published studies from around the world. |
| Databáze: | OpenAIRE |
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