Overcoming Challenges to Surrogate Decision Making for Young Adults at the End of Life
| Autor: | Yordanka Kirkova, Stephen Fox, Nathan Lightfoot, Sheinei Alan |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Adult
Palliative care Adolescent Surrogate decision-maker business.industry Communication Decision Making Psychological intervention General Medicine Death 03 medical and health sciences Distress Young Adult 0302 clinical medicine Resource (project management) Nursing 030220 oncology & carcinogenesis Spirituality Moral distress Medicine Humans 030212 general & internal medicine Young adult business Advance Directives |
| Zdroj: | The American journal of hospicepalliative care. 38(6) |
| ISSN: | 1938-2715 |
| Popis: | Surrogate decision makers (SDMs) are challenged by difficult decisions at the end of life. This becomes more complex in young adult patients when parents are frequently the SDMs. This age group (18 to 39 years old) commonly lacks advanced directives to provide guidance which results in increased moral distress during end of life decisions. Multiple factors help guide medical decision making throughout a patient’s disease course and at the end of life. These include personal patient factors and SDM factors. It has been identified that spiritual and community group support is a powerful, but inadequately used resource for these discussions. It can improve patient-SDM-provider communications, decrease psycho-social distress, and avoid unnecessary interventions at the end of life. |
| Databáze: | OpenAIRE |
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