Cancer patient perspectives regarding preparedness for end-of-life care: A qualitative study
| Autor: | James Y. Suen, Natasa Milojkovic, Issam Makhoul, Fade Mahmoud, Cindy W. Mikeal, Stephanie Simonton-Atchley, Laura F. Hutchins, Konstantinos Arnaoutakis, Allen C. Sherman, Sarah E. Harrington, Kendra M. Anderson |
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| Rok vydání: | 2018 |
| Předmět: |
Male
Patients 03 medical and health sciences 0302 clinical medicine Nursing Neoplasms medicine Humans 030212 general & internal medicine Applied Psychology Qualitative Research Aged Terminal Care business.industry Cancer Middle Aged medicine.disease humanities Psychiatry and Mental health Oncology 030220 oncology & carcinogenesis Preparedness Female business End-of-life care Attitude to Health Qualitative research |
| Zdroj: | Journal of psychosocial oncology. 36(4) |
| ISSN: | 1540-7586 |
| Popis: | The extent to which patients feel prepared for end-of-life (EOL) may be associated with important clinical outcomes. Despite growing interest in the concept of "preparedness," however, there is insufficient information about what cancer patients actually need to feel prepared. Such information is foundational for patient-centered care, theory-building, and instrument development.This qualitative study examined patient perspectives regarding preparedness for EOL care.In-depth interviews were conducted with patients with advanced malignancies and limited life expectancies. Participants were drawn from a large academic cancer center and had a diverse range of malignancies. Thematic text analysis was used to analyze the data.Six overarching themes emerged. These included readiness to manage concerns about: (1) EOL planning (e.g., goals of care, location of care); (2) interactions with healthcare providers (e.g., communication, symptom control); (3) interactions with family/friends (e.g., perceived burden, support); (4) emotional well-being (e.g., existential distress, fulfillment); (5) spiritual well-being (e.g., spiritual comfort, congregational support); and (6) financial well-being (e.g., medical expenses, estate planning).Findings highlight areas that patients themselves regard as critical for a sense of preparedness for EOL care. Participants emphasized broader concerns than those previously construed as facets of patient preparedness, and these domains offer modifiable targets for intervention. |
| Databáze: | OpenAIRE |
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