European principles of haemophilia care
| Autor: | Riitta Lassila, Alessandro Gringeri, Jørgen Ingerslev, Angela Thomas, Krista Fischer, Jan Astermark, B. T. Colvin, W. Schramm |
|---|---|
| Rok vydání: | 2008 |
| Předmět: |
Emergency Medical Services
medicine.medical_specialty Specialties Medical Population MEDLINE Hemorrhage 030204 cardiovascular system & hematology Hemophilia A Multidisciplinary team Haemophilia 03 medical and health sciences 0302 clinical medicine Nursing Multidisciplinary approach medicine Humans Registries education Genetics (clinical) Patient Care Team Clotting factor education.field_of_study National organization business.industry Hematology General Medicine medicine.disease Home Care Services Blood Coagulation Factors Recombinant Proteins 3. Good health Europe Physical therapy Medicine Home treatment business Delivery of Health Care Specialization 030215 immunology |
| Zdroj: | Colvin, B T, Astermark, J, Fischer, K, Gringeri, A, Lassila, R, Schramm, W, Thomas, A, Ingerslev, J & Inter Disciplinary Working Group 2008, ' European principles of haemophilia care ', Haemophilia, vol. 14, no. 2, pp. 361-74 . https://doi.org/10.1111/j.1365-2516.2007.01625.x |
| ISSN: | 1365-2516 1351-8216 |
| DOI: | 10.1111/j.1365-2516.2007.01625.x |
| Popis: | Udgivelsesdato: 2008-Mar As the management of haemophilia is complex, it is essential that those with the disorder should have ready access to a range of services provided by a multidisciplinary team of specialists. This document sets out the principles of comprehensive haemophilia care in Europe. Within each country there should be a national organization which oversees the provision of specialist Comprehensive Care Centres that provide the entire spectrum of clinical and laboratory services. Depending upon the size and geographical distribution of the population, a network of smaller haemophilia centres may also be necessary. There should be arrangements for the supply of safe clotting factor concentrates which can also be used in home treatment and prophylaxis programmes. A national register of patients is recommended along with collection of treatment statistics. As comprehensive haemophilia care is multidisciplinary by nature, the need for education and research programmes for all staff members is emphasized: Members of the Interdisciplinary Working Group not represented in the list of authors are mentioned in Section 4 of this document. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|