'You Can’t be Cold and Scientific'
Autor: | Nicole M. Schwartz, Robert S. Olick, Colleen M. Gibbons, Katherine E. McDonald |
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Rok vydání: | 2015 |
Předmět: |
Adult
Male Social Psychology Research Subjects media_common.quotation_subject Article Ethics Research Education Young Adult Residence Characteristics Intellectual Disability Perception Intellectual disability Research policy medicine Humans Disabled Persons Qualitative Research Aged media_common Research ethics Ethical issues business.industry Research Communication Middle Aged Public relations medicine.disease Policy Potential harm Attitude Female Medical model of disability business Psychology Social psychology Qualitative research |
Zdroj: | Journal of Empirical Research on Human Research Ethics. 10:196-208 |
ISSN: | 1556-2654 1556-2646 |
DOI: | 10.1177/1556264615575512 |
Popis: | Perceptions, attitudes, and ethical concerns related to conducting research with adults with intellectual disability hinder scientific innovation to promote health. Yet we lack an understanding of community views on effective research policy and practice. To address this knowledge void, we qualitatively studied the views of adults with intellectual disability and those who provide them support regarding research participation of adults with intellectual disability. We found substantial support for their inclusion, particularly given the possibility of benefits to adults with intellectual disability, researchers, and society. We also found concerns for potential harm and differing ideas on how to promote safety. Our findings emphasize the importance of their inclusion in research, and the need for policies and practices that promote respect and safety. |
Databáze: | OpenAIRE |
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