COVID-19 and children with congenital anomalies: a European survey of parents’ experiences of healthcare services
| Autor: | Anna Latos-Bieleńska, Elena Marcus, Anna Jamry-Dziurla, Judith Rankin, Ingeborg Barisic, Clara Cavero- Carbonell, Elly Den Hond, Ester Garne, Lucas Genard, Ana João Santos, L Renée Lutke, Carlos Matias Dias, Christina Neergaard Pedersen, Amanda Neville, Annika Niemann, Ljubica Odak, Lucía Páramo-Rodríguez, Anna Pierini, Anke Rissmann, Joan K Morris |
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| Jazyk: | angličtina |
| Rok vydání: | 2022 |
| Předmět: | |
| Zdroj: | BMJ Open r-FISABIO. Repositorio Institucional de Producción Científica instname BMJ Open, 12(7):e061428. BMJ PUBLISHING GROUP |
| ISSN: | 2044-6055 |
| Popis: | ObjectiveTo survey parents and carers of children with a congenital anomaly across Europe about their experiences of healthcare services and support during the COVID-19 pandemic.DesignCross-sectional study.SettingOnline survey in 10 European countries, open from 8 March 2021 to 14 July 2021.Population1070 parents and carers of children aged 0–10 years with a cleft lip, spina bifida, congenital heart defect (CHD) requiring surgery and/or Down syndrome.Main outcome measuresParental views about: the provision of care for their child (cancellation/postponement of appointments, virtual appointments, access to medication), the impact of disruptions to healthcare on their child’s health and well-being, and satisfaction with support from medical sources, organisations and close relationships.ResultsDisruptions to healthcare appointments were significantly higher (pConclusionA large proportion of participants reported disruptions to healthcare during the pandemic, which for some had a significant impact on their child’s health. Regional differences in disruptions raise questions about the competence of certain healthcare systems to meet the needs of this vulnerable group of patients and indicate improvements should be strived for in some regions. |
| Databáze: | OpenAIRE |
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