Social determinants in the access to health care for Chagas disease: A qualitative research on family life in the 'Valle Alto' of Cochabamba, Bolivia

Autor: Jimeno, I., Mendoza, N., Zapana, F., De La Torre, L., Torrico, F., Lozano, D., Billot, C., Pinazo, M. J., Gresle, A. S., Balazs, B., Szakal, D., Malagrida, R., Pino, M., Estany, A., Belaen, F., Baichoo, S., Zweekhorst, M., Urias, E., Lynch, D., Bagnoli, F., Pacini, G., Hassine, H., Matooug, S., Abdelhak, S., Zitouna, N., Belghith, M., Hadhri, N., Benmoussa, T., Ferchichi, A., Kabbage, M., Delgado, M. J. P.
Přispěvatelé: Athena Institute, Network Institute, APH - Global Health
Jazyk: angličtina
Rok vydání: 2021
Předmět:
Gerontology
Male
Social Determinants of Health
Health Care Providers
Bolivia
Chagas Disease
Decision Making
Female
Geography
Health Facilities
Humans
Public Health
Family
Health Services Accessibility
Qualitative Research
Social Sciences
Disease
Geographical locations
0302 clinical medicine
Medical Conditions
Sociology
Health care
Medicine and Health Sciences
Public and Occupational Health
030212 general & internal medicine
Medical Personnel
Human Families
Protozoans
Trypanosoma Cruzi
Multidisciplinary
1. No poverty
Eukaryota
Family life
Justice and Strong Institutions
Socioeconomic Aspects of Health
3. Good health
Professions
Medicine
Psychosocial
Research Article
Neglected Tropical Diseases
Trypanosoma
SDG 16 - Peace
Science
030231 tropical medicine
03 medical and health sciences
Physicians
parasitic diseases
Parasitic Diseases
Social determinants of health
Socioeconomic status
Protozoan Infections
business.industry
SDG 16 - Peace
Justice and Strong Institutions

Organisms
Biology and Life Sciences
South America
Tropical Diseases
Science shop
Parasitic Protozoans
Health Care
Health Care Facilities
People and Places
Population Groupings
business
Qualitative research
Zdroj: PLoS ONE
on behalf of the InSPIRES Consortium 2021, ' Social determinants in the access to health care for Chagas disease : A qualitative research on family life in the “Valle Alto” of Cochabamba, Bolivia ', PLoS ONE, vol. 16, no. 8, e0255226, pp. 1-33 . https://doi.org/10.1371/journal.pone.0255226
PLoS ONE, 16(8):e0255226, 1-33. Public Library of Science
PLoS ONE, Vol 16, Iss 8, p e0255226 (2021)
PLOS ONE
ISSN: 1932-6203
Popis: IntroductionChagas disease is caused by theTrypanosoma cruziinfection. It is a neglected tropical disease with considerable impact on the physical, psychological, familiar, and social spheres. The Valle Alto of Cochabamba is a hyperendemic region of Bolivia where efforts to control the transmission of the disease have progressed over the years. However, many challenges remain, above all, timely detection and health-care access.MethodsFollowing the Science Shop process, this bottom-up research emerged with the participation of the civil society from Valle Alto and representatives of the Association ofCorazones Unidos por el Chagasfrom Cochabamba. The aim of this study is to explore the social determinants in the living realities of those affected by Chagas disease or the silent infection and how families in the Valle Alto of Cochabamba cope with it. An interdisciplinary research team conducted a case study of the life stories of three families using information from in-depth interviews and performed a descriptive qualitative content analysis and triangulation processes.FindingsFindings provide insights into social circumstances of the research subjects’ lives; particularly, on how exposure toTrypanosoma cruziinfection affects their daily lives in terms of seeking comprehensive health care. Research subjects revealed needs and shared their experiences, thus providing an understanding of the complexity of Chagas disease from the socioeconomic, sociocultural, political, and biomedical perspectives. Results enlighten on three dimensions: structural, psychosocial, and plural health system. The diverse perceptions and attitudes toward Chagas within families, including the denial of its existence, are remarkable as gender and ethnocultural aspects. Findings support recommendations to various stakeholders and translation materials.ConclusionsIntersectional disease management and community involvement are essential for deciding the most appropriate and effective actions. Education, detection, health care, and social programs engaging family units ought to be the pillars of a promising approach.
Databáze: OpenAIRE