Social determinants in the access to health care for Chagas disease: A qualitative research on family life in the 'Valle Alto' of Cochabamba, Bolivia
Autor: | Jimeno, I., Mendoza, N., Zapana, F., De La Torre, L., Torrico, F., Lozano, D., Billot, C., Pinazo, M. J., Gresle, A. S., Balazs, B., Szakal, D., Malagrida, R., Pino, M., Estany, A., Belaen, F., Baichoo, S., Zweekhorst, M., Urias, E., Lynch, D., Bagnoli, F., Pacini, G., Hassine, H., Matooug, S., Abdelhak, S., Zitouna, N., Belghith, M., Hadhri, N., Benmoussa, T., Ferchichi, A., Kabbage, M., Delgado, M. J. P. |
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Přispěvatelé: | Athena Institute, Network Institute, APH - Global Health |
Jazyk: | angličtina |
Rok vydání: | 2021 |
Předmět: |
Gerontology
Male Social Determinants of Health Health Care Providers Bolivia Chagas Disease Decision Making Female Geography Health Facilities Humans Public Health Family Health Services Accessibility Qualitative Research Social Sciences Disease Geographical locations 0302 clinical medicine Medical Conditions Sociology Health care Medicine and Health Sciences Public and Occupational Health 030212 general & internal medicine Medical Personnel Human Families Protozoans Trypanosoma Cruzi Multidisciplinary 1. No poverty Eukaryota Family life Justice and Strong Institutions Socioeconomic Aspects of Health 3. Good health Professions Medicine Psychosocial Research Article Neglected Tropical Diseases Trypanosoma SDG 16 - Peace Science 030231 tropical medicine 03 medical and health sciences Physicians parasitic diseases Parasitic Diseases Social determinants of health Socioeconomic status Protozoan Infections business.industry SDG 16 - Peace Justice and Strong Institutions Organisms Biology and Life Sciences South America Tropical Diseases Science shop Parasitic Protozoans Health Care Health Care Facilities People and Places Population Groupings business Qualitative research |
Zdroj: | PLoS ONE on behalf of the InSPIRES Consortium 2021, ' Social determinants in the access to health care for Chagas disease : A qualitative research on family life in the “Valle Alto” of Cochabamba, Bolivia ', PLoS ONE, vol. 16, no. 8, e0255226, pp. 1-33 . https://doi.org/10.1371/journal.pone.0255226 PLoS ONE, 16(8):e0255226, 1-33. Public Library of Science PLoS ONE, Vol 16, Iss 8, p e0255226 (2021) PLOS ONE |
ISSN: | 1932-6203 |
Popis: | IntroductionChagas disease is caused by theTrypanosoma cruziinfection. It is a neglected tropical disease with considerable impact on the physical, psychological, familiar, and social spheres. The Valle Alto of Cochabamba is a hyperendemic region of Bolivia where efforts to control the transmission of the disease have progressed over the years. However, many challenges remain, above all, timely detection and health-care access.MethodsFollowing the Science Shop process, this bottom-up research emerged with the participation of the civil society from Valle Alto and representatives of the Association ofCorazones Unidos por el Chagasfrom Cochabamba. The aim of this study is to explore the social determinants in the living realities of those affected by Chagas disease or the silent infection and how families in the Valle Alto of Cochabamba cope with it. An interdisciplinary research team conducted a case study of the life stories of three families using information from in-depth interviews and performed a descriptive qualitative content analysis and triangulation processes.FindingsFindings provide insights into social circumstances of the research subjects’ lives; particularly, on how exposure toTrypanosoma cruziinfection affects their daily lives in terms of seeking comprehensive health care. Research subjects revealed needs and shared their experiences, thus providing an understanding of the complexity of Chagas disease from the socioeconomic, sociocultural, political, and biomedical perspectives. Results enlighten on three dimensions: structural, psychosocial, and plural health system. The diverse perceptions and attitudes toward Chagas within families, including the denial of its existence, are remarkable as gender and ethnocultural aspects. Findings support recommendations to various stakeholders and translation materials.ConclusionsIntersectional disease management and community involvement are essential for deciding the most appropriate and effective actions. Education, detection, health care, and social programs engaging family units ought to be the pillars of a promising approach. |
Databáze: | OpenAIRE |
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