Neurosurgical contribution within a complex NF1 supraregional service
| Autor: | Calvin Soh, H. Raffalli-Ebezant, J.E. Elloo, Federico Roncaroli, G. Evans, Emma Burkitt-Wright, Grace Vassallo, K.J. George, J. Ealing, K. Karabatsou |
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| Rok vydání: | 2019 |
| Předmět: |
Adult
Male congenital hereditary and neonatal diseases and abnormalities Service (systems architecture) Neurofibromatosis 1 Adolescent Specialty Multidisciplinary team Neurosurgical Procedures 03 medical and health sciences Young Adult 0302 clinical medicine Multidisciplinary approach medicine Humans neoplasms Aged Retrospective Studies Patient Care Team business.industry General Medicine Middle Aged medicine.disease nervous system diseases 030220 oncology & carcinogenesis Surgery Female Neurology (clinical) Medical emergency business 030217 neurology & neurosurgery |
| Zdroj: | Clinical neurology and neurosurgery. 180 |
| ISSN: | 1872-6968 |
| Popis: | Objectives The goal of this study was to review and present neurosurgical related activity within a multidisciplinary nationally commissioned specialty neurofibromatosis type I (NF1) center. Patients & methods We reviewed all NF1 Neurosurgical MDTs, NF1 Neurosurgical clinics and all neurosurgical procedures carried out in NF1 patients over an 8-year period. Results Since the inception of the service in 2009, 1505 cases were discussed at our NF-1 multidisciplinary meeting, 171 clinic appointments in complex NF1 patients with neurosurgical pathologies and 43(cranial and spinal) operations were performed. Conclusions The formation of a supraregional multidisciplinary team allows for a better understanding of the disease, a comprehensive evaluation of neuroimaging findings and a steep learning curve in the management of NF1 surgical conditions. We provide holistic treatment for these patients via direct care, specialist advice and liaison with local units. |
| Databáze: | OpenAIRE |
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