Adapting patient and public involvement in patient‐oriented methods research: Reflections in a Canadian setting during COVID‐19
| Autor: | Linda C. Li, Leana Garraway, Martha L. P. MacLeod, Nelly D. Oelke, Jenny Leese |
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| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
2019-20 coronavirus outbreak
knowledge translation Canada Quality management Coronavirus disease 2019 (COVID-19) Context (language use) Nothing About Us Without Us Viewpoint Article COVID‐19 Knowledge translation Humans In patient Pandemics business.industry Viewpoint Articles Public Health Environmental and Occupational Health COVID-19 patient and public involvement Public relations Public involvement patient‐oriented Research Design community participation Patient Participation business Psychology |
| Zdroj: | Health Expectations : An International Journal of Public Participation in Health Care and Health Policy |
| ISSN: | 1369-7625 1369-6513 |
| Popis: | Background Processes of the patient and public involvement (PPI) in health research shifted quickly during 2020. Faced with large‐scale issues, such as the COVID‐19 pandemic, the need to adapt processes of PPI to uphold commitments to nurturing the practice of ‘nothing about us without us’ in research has been urgent and profound. We describe how processes of PPI in research on patient‐oriented methods of knowledge translation and implementation science were adapted by four teams in a Canadian setting. Methods As part of an ongoing quality improvement self‐study to enhance PPI within these teams, team members shared their experiences of PPI in the context of this pivotal year during interviews and facilitated discussions. Drawing on these experiences, we outline challenges and reflections for adapting processes of PPI in health research on methods in times of urgency, conflict and fast‐moving change. Discussion Our reflections offer insight into common issues encountered across teams that may be amplified during times of rapid change, including handling change and uncertainty, sustaining relationship‐building and hearing differing perspectives in processes of PPI. Conclusion These learnings present an opportunity to help others active in or planning patient‐oriented methods research to reflect on the changing nature of PPI and how to adapt PPI processes in response to turbulent situations in the future. Patient and Public Contributions The key reflections presented draw heavily from perspectives shared by eight patient and public partners in interviews and facilitated discussions (the conduct and analysis of data in the quality improvement self‐study). |
| Databáze: | OpenAIRE |
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