Updating the Canadian Hemophilia Outcomes–Kids Life Assessment Tool (CHO-KLAT Version2.0)
| Autor: | Nancy L. Young, Randi Ray, Tricia A. Burke, Cindy Wakefield, Patricia McCusker, Victor S. Blanchette |
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| Rok vydání: | 2013 |
| Předmět: |
Male
Canada medicine.medical_specialty Adolescent Concordance Validity 030204 cardiovascular system & hematology Hemophilia A 03 medical and health sciences 0302 clinical medicine Quality of life hemophilia Outcome Assessment Health Care Content validity medicine Humans health outcomes 030212 general & internal medicine Child business.industry Health Policy Debriefing Public Health Environmental and Occupational Health Reproducibility of Results Cognition questionnaires 3. Good health Clinical trial quality of life Sample size determination Physical therapy business |
| Zdroj: | Value in Health. 16:837-841 |
| ISSN: | 1098-3015 |
| Popis: | ObjectivesHemophilia is an X-chromosome–linked disorder associated with recurrent bleeding into muscles and joints, leading to pain and limitations in physical function that may diminish quality of life. The Canadian Hemophilia Outcomes–Kids Life Assessment Tool (CHO-KLAT) is a disease-specific measure of quality of life that was recently revised to facilitate cross-cultural adaptation. This study assessed the validity and reliability of version 2.0 of the CHO-KLAT (CHO-KLAT2.0).MethodsContent validity was assessed via detailed cognitive debriefing to confirm that Canadian boys understood the CHO-KLAT2.0. The measurement properties of the CHO-KLAT2.0 were assessed in comparison to those of the PedsQL, the Haemo-QoL, and two global ratings. Most children completed the CHO-KLAT2.0 a second time to assess test-retest reliability.ResultsCognitive debriefing was completed with 12 boys (age 8.6–17.8 years) and 9 of their parents and resulted in no substantive changes. Sixty boys (mean age 11.8 years) participated in the validation phase, which showed a mean CHO-KLAT2.0 score of 75.4±12.0, strong correlations with the PedsQL (r = 0.62, P |
| Databáze: | OpenAIRE |
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