Co-Design of a Neurodevelopment Assessment Scale: A Study Protocol
| Autor: | Anne Masi, Syeda Ishra Azim, Christa Lam-Cassettari, Mark Dadds, Antonio Mendoza Diaz, Georgina Henry, Lisa Karlov, Ping-I Lin, Kylie-Ann Mallitt, Alicia Montgomery, Iva Strnadová, Andrew Whitehouse, Valsamma Eapen |
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| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Adult
Psychometrics Health Toxicology and Mutagenesis neurodevelopmental disorders Public Health Environmental and Occupational Health scale development Reproducibility of Results clinical phenotype Article Caregivers transdiagnostic neurodevelopment assessment Humans Medicine Delivery of Health Care |
| Zdroj: | International Journal of Environmental Research and Public Health, Vol 18, Iss 12837, p 12837 (2021) International Journal of Environmental Research and Public Health International Journal of Environmental Research and Public Health; Volume 18; Issue 23; Pages: 12837 |
| ISSN: | 1661-7827 1660-4601 |
| Popis: | Neurodevelopmental disorders are a heterogeneous group of conditions with overlapping symptomatology and fluctuating developmental trajectories that transcend current diagnostic categorisation. There is a need for validated screening instruments which dimensionally assess symptomatology from a holistic, transdiagnostic perspective. The primary aim is to co-design a Neurodevelopment Assessment Scale (NAS), a user-friendly transdiagnostic assessment inventory that systematically screens for all signs and symptoms commonly encountered in neurodevelopmental disorders. Our first objective is to undertake development of this tool, utilising co-design principles in partnership with stakeholders, including both those with lived experience of neurodevelopmental disorders and service providers. Our second objective is to evaluate the face validity, as well as the perceived utility, user-friendliness, suitability, and acceptability (i.e., ‘social validity’), of the NAS from the perspective of parents/caregivers and adults with neurodevelopmental disorders, clinicians, and service providers. Our third objective is to ascertain the psychometric properties of the NAS, including content validity and convergent validity. The NAS will provide an efficient transdiagnostic tool for evaluating all relevant signs, symptoms, and the dimensional constructs that underpin neurodevelopmental presentations. It is anticipated that this will maximise outcomes by enabling the delivery of personalised care tailored to an individual’s unique profile in a holistic and efficient manner. |
| Databáze: | OpenAIRE |
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