Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative interview study of parents

Autor:	Eileen M. Harwood, Karim Thomas Sadak, Taiwo O. Aremu, Milki T. Gemeda, Joseph P. Neglia, David R. Freyer, Michelle C. Grafelman, Jude P. Mikal
Rok vydání:	2021
Předmět:	Adult Male Parents Transition to Adult Care Cancer Research Adolescent media_common.quotation_subject Aftercare Survivorship Literacy Young Adult Cancer Survivors Nursing Neoplasms Surveys and Questionnaires Survivorship curve Health care Humans Radiology Nuclear Medicine and imaging Transitional care Young adult RC254-282 Qualitative Research Research Articles media_common Protocol (science) business.industry fungi Neoplasms. Tumors. Oncology. Including cancer and carcinogens Clinical Cancer Research humanities Health Literacy Oncology Financial literacy Female Childhood cancer survivor transition qualitative parent Thematic analysis business Psychology Research Article
Zdroj:	Cancer Medicine Cancer Medicine, Vol 10, Iss 18, Pp 6239-6248 (2021)
ISSN:	2045-7634
DOI:	10.1002/cam4.4164
Popis:	Background Survivor‐focused care for adolescent and young adult (AYA) childhood cancer survivors (CCS) often involves their parents. Recognizing the importance of parents in the ongoing care of CCS, our study sought to identify key aspects of a successful transition for CCS from pediatric‐ to adult‐centered care from the parent perspective. Methods We conducted qualitative interviews with 26 parents of CCS who were receiving care in the long‐term follow‐up (LTFU) clinic at a single institution. We used a semi‐structured interview protocol with the parents and conducted a thematic content analysis. Results Using a constant comparison approach, data revealed three primary themes regarding parents’ perspectives toward ensuring a seamless transition from pediatric‐ to adult‐centered follow‐up care: (1) the transition needs to include seamless communication between all involved parties, (2) survivors need to demonstrate sufficient health care self‐efficacy in order to achieve a successful transition, and (3) the survivor‐focused care should include support for survivors’ overall well‐being, including financial and health insurance literacy. Conclusions For parents of AYA CCS, the optimal pediatric to adult care transition model should include mechanisms that facilitate communication between parents, CCS, and survivor‐focused providers while also supporting self‐efficacy and financial literacy as it relates to health insurance. Survivor‐focused care for adolescent and young adult (AYA) childhood cancer survivors (CCS) often involves their parents. To parents, adolescent and young adult (AYA) childhood cancer survivors (CCS), the optimal pediatric to adult care transition model should include mechanisms that facilitate communication between parents, CCS, and survivor‐focused providers while also supporting self‐efficacy and financial literacy as it relates to health insurance.
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e4caef3797ee347bd97d1abc903f2c19 https://doi.org/10.1002/cam4.4164 Zobrazit plný text záznamu Plný text ve formátu PDF Plný text ve formátu HTML
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